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My mum has inoperable lung cancer.

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scamander

Banned
I'm not really someone who often starts new threads on forums and it actually will be my first one on GAF at all, but today was a bad day for me and I really need to write this down somewhere; Neogaf seems like the best place to do this.

It all started three weeks ago, when my mother suddenly had a seizure while she was at work. She started to feel queasy, was barely able to make it to a chair and just wanted to drink some water when it started. Thankfully she works in the Neurosurgery department of a hospital, so she was treated as an inpatient immediately and was still around people she trusts and who care about her. Two days later I got a call from my sister. She was asking if everything's okay with me and if I could sit down. She was trying to control her voice, but I could hear her crying and at first I thought that Mowgli, our dog who just turned 15, must have died. Than I got the news about our mother: "Mother had a seizure, MRT and CT images show a shadow within her brain- more peripherally, thankfully. There is the possibility it could be an abbess, but a brain tumour is more likely, because of the lack of inflammatory markers in her blood. She will have surgery on Monday or Tuesday".
I was shocked and confused. My mother just called the evening before and seemed perfectly fine, not like she was lying in a hospital bed and just got that first diagnose. Later I learned that she wanted to tell me, but couldn't bring herself to do it, after I told her I was grocery shopping.
After the conversation with my sister I called my best friend (who succeeds in calming me down in every situation), was packing some stuff in a rucksack and took the next train to my hometown. Together with my sister, I visited my mother later that day and we all cried together.
The next few weeks I was starting to get optimistic she could be healed completely. At that point it was already likely to be lung cancer, because she is a chain smoker and there was a shadow they found on an image of her thorax. On the other hand, they found no other metastasises in her whole body and the brain surgery went perfectly fine. They could remove the tumour without problems and didn't damage any of the surrounding areas (speech area and left motor cortex). I was overly optimistic, maybe even naive. Two days later I witnessed her second seizure which was really awful, because we all were scared it could be a stroke or cerebral haemorrhage, which may happen so close after surgery. Thankfully the surgeon who operated her was around, took care of her and took another CT image of her head immediately. It was a throwback for my mother. She was so, so scared, had sudden problems with the pronunciation of words, got depressive the days after and lost a bit of her fighting spirit. All of that was only temporarily though. Last Friday she was allowed to go home, full of hope, because one surgeon told her her lung tumour would be most likely operable. We celebrated her 51st on Sunday with the whole family and had a lot of fun for the first time since all of that started. Then, today, the pneumologist was calling and told us, they will not operate and that she will get irradiation and chemotherapy instead. My aunt asked her pain therapist to look at my mother's hospital discharge letter and he told her my mother doesn't need to stop smoking with that diagnosis any more. I just googled and only 5% of all patients with inoperable lung cancer are alive five years after disease outbreak.
I never felt so helpless in my whole life and even though I managed to stay strong before my mother was going to bed, I can't stop crying now that I'm alone.

I just needed to get that off my chest. I will try to sleep now and will come back to that thread tomorrow.
 

Nachos

Member
I don't know what there is to say that isn't just some trite, throwaway condolence or that could potentially read as insincere, but that was crushing to read. Whatever happens, just make her feel loved.
 
Lost my mom to cancer in January this year to lung cancer that spread to her liver and she was only 52.

It sucks, nothing more to it. I'm sorry you have to feel the pain I have.
 

Zetta

Member
I lost my mother after she was diagnosed with cancer on her liver which led to a series of events which caused the worse month in my life. My condolences to you and just be with your mom as much as possible and soak it all in. I wish I had that opportunity but didn't, cancer fucking sucks so much.
 
I am very sorry scamander.

This is not meant to inspire any false hope, but I work with someone who was diagnosed with Stage 4 lung cancer 11 years ago. She is currently in remission.

I hope the same for your mom.
 
Really sorry to hear that.

There's not a lot I can say to be of any comfort to you I'm sure, I can only echo the other posters sentiments. Stay strong for you mum, and make the most of your time together.

Best of wishes to you and your family.
 
Right here with you OP. Last year my mum got diagnosed with bowel cancer, and after some surgery and a course of chemo it eventually went away, but not before it had spread to her lungs. This year they gave her between 1 and 3 years to live. Just try to be there for her as much as you can, she'll want to spend as much time as she can with those closest to her. The chemo will seriously impact her quality of life and as the cancer gets worse she'll be able to do less and less. Try to do things you want to do with her as soon as possible.
 
I'm a father of two children. If I'm ever in a really tough spot, the foremost things I would want to know are that I helped my kids have a good life and that they're going to be okay.

You can't say with any certainty what will happen to your mother - people can fare much better or worse than the initial diagnoses, and I hope that it's the former for her - but if it gets really bad, I would let her know that you had a good life and that you'll be okay.
 

Rest

All these years later I still chuckle at what a fucking moron that guy is.
This needs some levity, so...
Get her a "Make You Own Meth" kit.


I'm sorry to hear about that. My dad died of brain cancer, it was kind of a pointless end. I hope that your mother is around for a while, and that you can enjoy her while she is.
 

double jump

you haven't lived until a random little kid ask you "how do you make love".
I'm so sorry to the op and others going threw this stuff.
Will keep your families in my prayers.
 

jakoh

Neo Member
I know its hard, but stay strong OP. My mother got diagnosed with ovarian cancer around 2009-2010 and was given about 6 months to live. They couldn't operate as they said it had spread. They tried chemo and thankfully it helped her. She still has tumor but it has shrunk. I know it feels like you can't help her, but do what you can do in this scenario, be there for her and keep her happy. Hopefully chemo helps her.
 
My mom died a couple of years ago at 55 of liver cancer that had metastasized to her lung and her back, then possibly her bones. With her particular cancer neither chemo nor radiation would have killed the tumors. Tomorrow would have been her birthday.

I am deeply sorry that you and your family have to go through this pain, scamander.
Please gather all your strength and do everything that you know you need to do for your mom, for your family and for yourself. It even takes strength to cry and vent when you should instead of holding it back, and sinking. Talk with all the people that want to listen to you. I was lucky to have some great friends that did not let me sink, despite how much I wanted to do so.
You don't have to accept your lot. Hope is hope even in the faintest light. You fight by honoring your mother and cherishing the moments with her, and doing whatever it takes to have the peace of mind that you did all you could.
 

Daingurse

Member
My condolences Scamander, that is very hard to hear. Cancer has been a bane to my family, I'm so sorry to hear this. Hang in there man.
 

Mariolee

Member
This story and the following stories in this thread just broke my heart. Like others have said, just be there for her and be strong for her as you have been doing. Crying it out is also a great way to cope with this sort of tragedy. I'll keep her and you in my thoughts and prayers.
 
I'm sorry that your mother, yourself, and your family are going through this. It's scary and hard, and it's out of your control. But as I think you know you can still spend time with your mom. I don't have much to offer besides my condolences, hope that she makes it, and advice to spend a lot of time with her. Try to stay present for your sake and hers.
 

Slair

Member
I'm so sorry! My mum had small cell lung cancer (which I assume is the same as your mum) and passed away last year in January. I can't say much more than try not to worry about what could happen, try to be optimistic. I was optimistic up until the last day and we never let it get us down no matter how bad it looked. We still joked and took the piss out of each other. She lasted 6 years after being diagnosed and the doctors said we should prepare for the worst 2 years in a row and she still kept in trucking and she still kept on smoking. Fuck preparing for the worst and fuck anticipating the worst is round the corner. Couple things though, make sure she eats and make sure she keeps somewhat active. The chemo fucks up taste and she'll be tired a lot and my mum stopped eating because food tasted shit and sat down all day, she was way too stubborn and her legs muscles wasted away pretty quick. Dunno if any of this helps, but good luck to your mum, you and your family.
 
So sorry to hear this, OP, and anyone else who has lost their parents to illnesses. I lost my father due to diabetes. In most of these cases, it's because the illness was detected far too late.

For those of you whose parents are still healthy (or if you are over the age of 40), please, do your yearly checkups. An ounce of prevention is worth a pound of cure. Many illnesses, including cancers, are treatable if they are in stage 1 or 2. I know a half dozen people myself who have gone through treatment and / or surgery only to emerge victorious over five years after the fact because they caught their cancers early.

Please don't skip your medical checkups. And best of luck to your mother, OP.
 

yogloo

Member
Fuck cancer.
Op be patient with your mom. Cancer is going to screw with her mind a lot.
I wish you the best of luck.
 

SliChillax

Member
I am so sorry, that was so hard to read. I can only suggest to stay with her as much as possible, that's what I would do. As a matter of fact I'll do the same with my mother as soon as I can, life is too unpredictable.
 

AnAnole

Member
So sorry to hear this, OP, and anyone else who has lost their parents to illnesses. I lost my father due to diabetes. In most of these cases, it's because the illness was detected far too late.

For those of you whose parents are still healthy (or if you are over the age of 40), please, do your yearly checkups. An ounce of prevention is worth a pound of cure. Many illnesses, including cancers, are treatable if they are in stage 1 or 2. I know a half dozen people myself who have gone through treatment and / or surgery only to emerge victorious over five years after the fact because they caught their cancers early.

Please don't skip your medical checkups. And best of luck to your mother, OP.

You forgot the bit of advice most pertinent to this thread: don't fucking smoke.
 

Ray Wonder

Founder of the Wounded Tagless Children
I'm extremely sorry to hear that OP. It's legitimately one of my biggest fears in life. I wish you the strength to be there for her. Any situation like this breaks my heart. Keep your head up and hope for the best.

Honestly if you ever need someone to message, just to talk about it. I'm definitely open to listen.

My condolences.


Fuck cancer.
 
Sorry to hear OP. I wish your mother and your family the best. Stay strong and encourage her to fight and be there for her. Enjoy every moment OP. Life is so fucking short! My thoughts and prayers are with you!
 
You forgot the bit of advice most pertinent to this thread: don't fucking smoke.

I'm sorry but first, although you shouldn't smoke (that goes without saying), it doesn't help OP's mother's cause. Second, two cancer survivors that I know had lung cancer and both are non-smokers living in non-smoking homes. Third, the whole point of medical checkups is you can catch illnesses and receive treatment well before it is too late.

In the case of the two cancer survivors, they had lung cancer despite not smoking so heeding your advice (which is very sound advice, of course) wouldn't have helped had they not had their regular medical checkups and caught the illness in time. And chances are, if you are a smoker, you can still successfully recover from lung cancer if you catch it early enough.

And yes, to be clear - I do agree that not smoking is great advice, but not smoking doesn't prevent lung cancer either. So my advice is still to do your regular medical checkups.
 

Palmer_v1

Member
It sounds like she has a great family around her OP. Do what you can to support her but do not neglect yourself! If things get tough, look into a support group, etc. There is absolutely no shame in it.
 

Iadien

Guarantee I'm going to screw up this post? Yeah.
Sorry to hear OP. I know how you feel, I lost my father many years ago to lung cancer. It sucks, but don't give up, and don't let your mom give up either.
 

AnAnole

Member
I'm sorry but first, although you shouldn't smoke (that goes without saying), it doesn't help OP's mother's cause. Second, two cancer survivors that I know had lung cancer and both are non-smokers living in non-smoking homes. Third, the whole point of medical checkups is you can catch illnesses and receive treatment well before it is too late.

In the case of the two cancer survivors, they had lung cancer despite not smoking so heeding your advice (which is very sound advice, of course) wouldn't have helped had they not had their regular medical checkups and caught the illness in time. And chances are, if you are a smoker, you can still successfully recover from lung cancer if you catch it early enough.

And yes, to be clear - I do agree that not smoking is great advice, but not smoking doesn't prevent lung cancer either. So my advice is still to do your regular medical checkups.

Not smoking (or at least avoiding second-hand smoke) greatly decreases the odds of developing lung-cancer and other smoking related cancers (not to mention, other horrible chronic diseases that smokers are much more prone to developing). Smoking increases the odds of developing lung cancer by a factor of ~20. Yes, you could develop lung cancer from being exposed to radon gas or asbestos or perhaps you're just very unlucky / have bad genetics, but lung cancer would not be one of the big killers that it currently is if smoking didn't exist. Additionally, it is never too late to quit smoking. Even smokers diagnosed with lung cancer may improve survival odds if they quit at diagnosis - http://www.ascopost.com/ViewNews.aspx?nid=30651.

It's never a bad time to remind people how terrible it is to smoke tobacco. Even switching to e-cigarettes is a vastly better alternative for getting your nicotine fix -
https://www.gov.uk/government/uploa...ort_commissioned_by_Public_Health_England.pdf
 

carlsojo

Member
fuck cancer. my mom got diagnosed right around the same time i was finishing nursing school. probably the worst time in my life
 
Sad news. I'm sorry.

My mother died 31 years ago. It feels weird to have outlived the young age she died (36); My daughter wasn't even born when I was that age. She'd had thyroid cancer as a kid, but smoked (oh, for the chance to yell at her about that) and got lung cancer, which eventually spread everywhere. She still managed to live a few years after the diagnosis and chemo. I'm not sure how long that was, because she hid the illness from me. She/everyone told me she had tuberculosis, which even as a 12-year-old seemed like an odd diagnosis. I said, "Who gets tuberculosis these days?"

If I can offer any advice in this thread, it's for us all to be honest with our families about sickness and death. I'm a little emotionally removed from it, because her illness was so glossed over. In fact, she was angry with me before she had the surgery/recovery that she never woke up from, because I had missed that day's visitation. "What does it matter, you said you were going to be fine."

Good luck with your mom's prognosis.
 

Dan

No longer boycotting the Wolfenstein franchise
So sorry to hear that, I've somewhat been dealing with the same thing. My mom (non-smoker) was diagnosed with Stage 3B lung cancer in December/January. Fortunately radiation and chemo have been relatively successful, but it's going to be all about management, there's no 'cure' as it were.

The thing to do is keep strong and hopeful, enjoy as much time together as possible (whether that's during the next 2, 5 or 20+ years) and let the doctors do what they do best.

I just googled and only 5% of all patients with inoperable lung cancer are alive five years after disease outbreak.
It's easier said than done, but it's best to ignore this stuff. It really doesn't do anyone any good to think about. I know my mom's oncologists refuse to discuss the odds and whatnot, it's simply not helpful.
 
I feel your pain OP:

My grandfather who was bascially my father as I never knew my actual father complained to my grandmother that he wasn't feeling to well so my aunt drove him to the drove him to the hospital and the doctor said it was pneumonia, but at his age it really took a toll on him and he had to go to a nursing home for about 2 months. where he learned to walk and otther tasks

When he finally came home we had a little welcome home party, we told him he couldn't smoke or drink anymore so he'd be a little healthier and fit, about a year later around chistmas again he said he wasn't feeling good we again took him to the hospital and the doctoer came back that he had heart AND liver failure and his lungs were in terrible shape do to years of smoking and only had months to live....they sent him to a very nice hospice and I visited him nearly every day.

the later months were so unbearable, he lost the will to eat or drink, became very delirious, then just layed there making grunts....it was so hard I never felt so helpless in my life...we had the option to put him on a feeding tube but declined as we didn't want him laying their near vegatable status until he eventually died.

all I can say are my prayers are with you,(and as a religious man I pray for a miraculous recovery) I wish this fate on no one, just spend as much time as you can with them, cherish every moment you have with her, let your mother live life with no regrets and cherish the good and bad that made the person you are today and shaped the love that binds you together
 

ZangBa

Member
My mother died because of lung cancer, which also spread to her brain, at 56 a few years ago. All I can say is be there for her and do whatever she asks of you. Chemo will make her very weak, she will need support. The chemo affected my mother so badly there were nights she screamed, writhing in pain. I don't want to depress you further, but just be prepared for whatever happens and help her.
 

Juanfp

Member
Really sorry for that. Cancer is horrible.
Recently I had a friend that passed away because a brain tumor. It all went down so quickly.
Also years ago my grandfather passed away with pancreatic cancer. In that time I was very young so I really never was awared he was sick until it happen. But now just looking at his medical report of his last day I can only imagine how my family feel then.
I don't believe in miracles or things like that but maybe your mother can be in that 5%.
 

Ra\/en

Member
It's easier said than done, but it's best to ignore this stuff. It really doesn't do anyone any good to think about. I know my mom's oncologists refuse to discuss the odds and whatnot, it's simply not helpful.

It may not be uplifting, but it is important to be realistic. If a patient wants to know, they deserve to know. I don't think it is unreasonable for some people to choose to manage their treatment differently based upon certain statistics.

http://www.zocalopublicsquare.org/2011/11/30/how-doctors-die/ideas/nexus/
This is an interesting article, and as a physician, it resonates with me. It is an article about how some physicians manage their own illness (cancer).

I wish the OP's mom the best with her treatment, and I do hope that it is successful at keeping the disease at bay.
 

iKhayal18

Member
I am really sorry, OP. At my family we experienced how fucking ruthless cancer can be when my uncle died last year and he was only on his 40s... Enjoy her as much as you can, make her feel loved and make sure to let her know that she has been the best mother you could have. I hope that she lasts as much as possible... My best wishes for your mather, for you and your family.

Do not be afraid to share your feelings here, after all that I have seen here, NeoGAF is the best place to do that. We are here to support you in everything you need.
 
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