Now there is a delay....surgery being delayed for at least an hour.
Yeesh, my wife is scheduled for a c-section next week. Our first child and he's breech. Good luck!
Now there is a delay....surgery being delayed for at least an hour.
Now there is a delay....surgery being delayed for at least an hour.
Newest update
Still haven't had it done yet.
There wasn't just one emergency walkin this morning....there ended up being two. My wife's doctor came in a little while ago and let us know it would be around 1230 this afternoon.
Thank god the hospital has wifi.
Honestly, she was crying and was really scared that she was having to wait so long. The doctor came in about a hour ago and talked to her and her nerves have since calmed. She actually managed to take a little nap.
Nurses have started to come in and get her ready. Looks like she'll be going downstairs in about 25 minutes.
HERE WE GO!
Hi neogaf. Say hello to Candace May
Hi neogaf. Say hello to Candace May
Mom and baby are doing great. The wife is actually taking a shower for the first time since the surgery. Looks like we will be going home today.
Hi neogaf. Say hello to Candace May
Hello Candace May.Hi neogaf. Say hello to Candace May
So...any other parents have experience with Plagiocephaly here?
I sent some 4 month old pics to my family, one of which who is in pediatric orthopedics, and emailed me and noticed her head was really flat on one side.
He basically urged me to take my kid to an expert and get a starband helmet, which run like $3k if insurance won't cover it.
She's still young enough to take care of this with lots of tummy time and maybe the helmet, but my wife doesn't like what she's hearing from my brother (who likes bad news?) and it's compounding the situation.
The 3k isn't an issue...it's getting my wife on board with this and almost my poor kid having to wear this helmet 23 hours a day for 3+ months.
Then again, I don't want her to have cranial issues later in life. My brother also seems to think our doctor will not do much to help us, which sounds like I need to do a lot of this on my own.
Just trying to process this all. =(
Our daughter is in a cranial band now and guess what? She doesn't care when it's on and when you take it off, she's so happy to see it and wants to chew on it. lol long lost toy. She seriously doesn't even notice. She gets sweaty from it so we make sure to take it off, clean it, wash her head, etc frequently. But she doesn't mind it. She slept in it on the car ride home from picking it up.
Our daughter was born with some cranial issues. She had torticollis and moderate brachycephaly. We worked on the torticollis and she's better about turning her head to both sides, preventing a flat spot on one side or another. The brachycephaly was "moderate" at her appt early Feb, even after 7 months of postional therapy, which we started at the hospital after she was born. She still has that very round shape to her head that she's always had. If you look down at the top of her head, you can't tell what is the front, sides, and back of her head. I have a very round shaped face and head, so I just thought she got it from me and it wouldn't be a problem as she got older. There's no "flat spot" per se, and her head if very symmetrical, so even cosmetically, she would've looked fine. After doing research, it can cause problems, including migraines - which I have daily. Fffffuuuuuu so we wanted to have it corrected, if possible.
We took her to a specialist who confirmed and measured. Her head is the exact length front to back than it is side to side. From side to side should be shorter than front to back by about 75%. Her's is 100%. And this was after months of postional therapy - only laying flat to sleep basically, if that even. She was born that way, so no matter how much we worked with her, it was barely helping, maybe just correcting anything that happened overnight. She was sleeping through the night in her crib at 6 weeks, so no matter what we did to keep her off her head during the day, she was spending 12 hours straight on her back undoing whatever it was we did. So helmet it is.
At her first follow up (a week or 2 after the helmet), the length from front to back had grown 2 mm. She has another appt next week. It looks "better" I guess. It's more rounded in the back rather than the sides it seems, which is what the helmet is designed to do. It is more fitted in the front and open in the back so that as she grows, her head grows straight back rather than growing more rounded all over.
Our's was covered by insurance, despite my policy saying otherwise. We didn't even have to fight it. And it's been great now that she's rolling all over the place, crawling, pulling up, etc.
We took her to the pediatrician for her 4 month appointment and the doctor said it was very mild on the scale of plagiocephaly in her experience, but my brother kind of poisoned my mind saying doctors not trained in cranial issues will usually dismiss it.
I'm not sure what do do now. Besides working on neck strength and repositioning her I have an uphill battle convincing my wife we need to at least keep an eye on this. Her whole left side of her skull is flat while her right is round...it's fairly noticeable from the front and top and back.
She used to favor her flat side of her head when sleeping but now she kind of gives equal attention to both now that her neck is getting stronger, so I'm thinking she probably did have some degree of torticollis.
Her response is "well she'll just grow hair and you can't notice it"...but if her skull is smooshed I'm worried about developmental issues or headaches later in life.
I'm not sure what our next step is...do we need to get a referral from our pediatrician or can we contact a specialist directly?
How's the Dad doing? (nobody ever asks that)
Our doctor was concerned early on and the whole process still took a long time, so I'd definitely recommend trying to get into a specialist soon. If we would've waited any longer, the band would've been pretty much useless as their fastest head growth is happening before 6 months. Or instead of 3 months in the band, we'd be looking at 6 months in the band.
I kept thinking it would get better, and it seemed to but not enough. And everyone kept saying it was just cosmetic but that's her skull! Every time she would have a headache or not reach a milestone in time, I'd be blaming myself for not getting the helmet.
It definitely sounds like torticollis caused your little one's issues. Even if you get into a specialist, they're not going to make you sign up that day. We had a consultation, got the measurements, etc. went home, researched like crazy, and called them the next day to tell them we wanted to do it. My only regret is that I felt like your wife ("Eh she's a girl and will have long hair") and didn't go to the specialist sooner. We're never going to get the results we would have if we would've done the helmet a month or two sooner.
No clue about the referral. Our ped did call and set up the appt with the specialist, but I'm sure you can call around and see what is needed. If they need a referral, call your ped and have them do it. Our specialist is a Pedatric Plastic Surgeon, which scared me at first, but he was great. Now we see him every 6 weeks or so and we see the orthotic lab who made the helmet every few weeks to a month. The helmet was originally $3800 but because so many insurance companies don't cover them, they discount it to $1500. Turns out ours was covered anyway, so we're paying $650 total. If you're in St Louis, I could give you the contact info lol
Good luck, and let me know if you have any questions. I dreaded making that decision so bad, but once we did, I felt so relieved. It really is the fastest, most effective treatment, but now that she's moving around more, maybe you'll see some progress. There's more than just tummy time too - babywearing, bumbo chair, laying belly to belly on mom/dad - just mix it up. There's also a Boppy noggin nest pillow that you could get for when she has to be in the car seat, swing, etc. I wasn't in love with it, but hey, we tried everything.
Thanks man. I'm working hard to get her neck strength up. I can see after 2 weeks already a difference in her neck strength. We have a bumbo and boppy and a baby Bjorn we need to use more.
That's good. Just keep an eye on it and keep working with her. It will definitely help. Just don't feel bad about calling a specialist if you are still seeing the flat spot in a few weeks.
Side note- if you don't like the Baby Bjorn, splurge for an Ergobaby. I have a ring sling I use and my husband uses the Ergobaby. You can use the Ergobaby for a few years. Thing's a beast.
I went through a few ring slings and baby Bjorns before we found what works best for us. We have a hippie baby store nearby that sells a ton of carriers, and we took her with us to test them out. The girl working was maybe 100lbs and was carrying around her chubby kid on her back with the Ergobaby like it was nothing. I have the Sakura Bloom brand of ring sling, which I love.
That's good. Just keep an eye on it and keep working with her. It will definitely help. Just don't feel bad about calling a specialist if you are still seeing the flat spot in a few weeks.
Side note- if you don't like the Baby Bjorn, splurge for an Ergobaby. I have a ring sling I use and my husband uses the Ergobaby. You can use the Ergobaby for a few years. Thing's a beast.
I went through a few ring slings and baby Bjorns before we found what works best for us. We have a hippie baby store nearby that sells a ton of carriers, and we took her with us to test them out. The girl working was maybe 100lbs and was carrying around her chubby kid on her back with the Ergobaby like it was nothing. I have the Sakura Bloom brand of ring sling, which I love.
BTW she was sorta born this way due to positioning in the womb and not from positional sleeping post birth. It's gotten noticeably better but still visible overall.
Her neck strength is up to 10 minute stretches of tummy time or in the bumbo before she gets tired or bored and starts fussing.
Same with our little one... We noticed it at the hospital. We never saw the progress most kids show with repositioning because it was from before she was born, not after. You guys might notice the same thing. Would be worth at least talking to a specialist.
10 min is good at that age! She'll enjoy sitting up more and more. My mom got an Exersaucer for our daughter and she loved sitting in that too, playing with the attached toys. Anything we could do to keep her entertained and off the back of her head. It didn't prevent us from getting the cranial band but it didn't hurt either.
20 minutes today in the Baby Bjorn while I vacuumed. Was exercise for me vacuuming with an additional 15-16lb baby, she was looking all over the place in both directions.
We had her on a playmat on the floor last night playing with her, and she wanted to show off to us how close she is to rolling over. She's like 99% there but gets stuck on her arm that is underneath her and she was getting frustrated. LOL.
:lol that seemed like yesterday for us! Our little one kept getting her shoulder and arm stuck too. Once they figure it out, they become an old pro and its on to the next thing.
Two weeks ago we started finger foods. She had that mastered in a day. She's been trying so hard to crawl forward. She mastered rolling over, crawling backward, even pulling herself up, but man she has not been able to go forward except in an army crawl. She did it a few times today though! Any day now and she'll be on the move. She rolls all over the floor now and knows how to get everywhere she wants without crawling, but her mind will be blown when she can explore other rooms within a few seconds. It's terrifying
Anybody have any suggestions about what you could have the baby sleep in if you have it in your bedroom with you the first few weeks as an alternative to a crib or bassinet? My wife and I were trying to find something very small and compact since we don't have much space for anything significantly big in our bedroom.
Anybody have any suggestions about what you could have the baby sleep in if you have it in your bedroom with you the first few weeks as an alternative to a crib or bassinet? My wife and I were trying to find something very small and compact since we don't have much space for anything significantly big in our bedroom.
Pack and play. Or, a drawer. Serious.
Rock and play. Just wash the cover weekly and wipe down the metal and plastic to keep it from getting moldy.Anybody have any suggestions about what you could have the baby sleep in if you have it in your bedroom with you the first few weeks as an alternative to a crib or bassinet? My wife and I were trying to find something very small and compact since we don't have much space for anything significantly big in our bedroom.
She's adorable.Update on our noodle.
She's 10 days old at this point. She sleeps for three hours at time, wakes up like clock work for diaper changes, and hardly ever cries. The second go around has been easy compared to our first child.
Update on our noodle.
She's 10 days old at this point. She sleeps for three hours at time, wakes up like clock work for diaper changes, and hardly ever cries. The second go around has been easy compared to our first child.
Pack and play. Or, a drawer. Serious.
Yeesh, my wife is scheduled for a c-section next week. Our first child and he's breech. Good luck!
Well, it was a amazing and scary time for us last week. My boy was born on Thursday via c-section. I was in the operating room when he was pulled out and immediately taken to a table. It took him about a minute to cry. Before that I could hear the nurses say "Cmon little guy" several times. I think they were performing resuscitation. My wife was asking if he was OK, I told her yes, but I didn't know. When he did cry, I almost broke down with joy. The nurses told us he was fine.