Autism - Welcome to the Spectrum

Status
Not open for further replies.
Hey everyone,

Haven't posted on this thread for a while, but I wanted to give you an update regarding my son. Last time I posted I mentioned he was initially diagnosed with developmental verbal/motor apraxia. He turned 3 in June, and we transitioned over to private ST/OT. He continues to make steady progress, and is now vocalizing all the time. The words are coming, slowly but surely. We have him set up to start in early childhood education this fall. Yesterday, my wife and I took him to a neurologist who specializes in childhood devolopment, and she did agree with his preliminary diagnosis. Overall, she feels he has an excellent prognosis. She also recommended that he start the P.L.A.Y Project. Anyone have any experience with that? My understanding is that in the very near future there is a prospective study to be released which will show considerable benefit of the P.L.A.Y project in kids with ASD. Hopefully, it will convince the insurance companies to cover the cost of the therapy. This gets expensive!
 
Hey everyone,

Haven't posted on this thread for a while, but I wanted to give you an update regarding my son. Last time I posted I mentioned he was initially diagnosed with developmental verbal/motor apraxia. He turned 3 in June, and we transitioned over to private ST/OT. He continues to make steady progress, and is now vocalizing all the time. The words are coming, slowly but surely. We have him set up to start in early childhood education this fall. Yesterday, my wife and I took him to a neurologist who specializes in childhood devolopment, and she did agree with his preliminary diagnosis. Overall, she feels he has an excellent prognosis. She also recommended that he start the P.L.A.Y Project. Anyone have any experience with that? My understanding is that in the very near future there is a prospective study to be released which will show considerable benefit of the P.L.A.Y project in kids with ASD. Hopefully, it will convince the insurance companies to cover the cost of the therapy. This gets expensive!

Glad to hear about the progress! Yes, all these treatments get extremely expensive. We're fortunate that the military is covering everything financially, because we would be in a tough spot otherwise.

I am not familiar with PLAY, but will look into it. Our son's main therapy is ABA, with a bit of the Floortime method interwoven. We do a combination like that at home when playing with him. It's basically all the central principles of ABA, but you approach the situation based on what your kid is interested in and join them in their play.
 
Glad to hear about the progress! Yes, all these treatments get extremely expensive. We're fortunate that the military is covering everything financially, because we would be in a tough spot otherwise.

I am not familiar with PLAY, but will look into it. Our son's main therapy is ABA, with a bit of the Floortime method interwoven. We do a combination like that at home when playing with him. It's basically all the central principles of ABA, but you approach the situation based on what your kid is interested in and join them in their play.


Thanks for the well wishes. PLAY is actually geared toward the parents (and other caregivers) of the child. It's designed to essentially teach you how to engage your child and keep him engaged and focused on the situation at hand. We are going to arrange a meeting with the project director who comes to our house and works with us for about 3 hours in the initial evaluation. I think it sounds similar to ABA/Floortime method you described. If I can get a hold of the study, I'll link it here.

Anyway, I can already tell these interventions are worth the expense. I really feel like he is coming along. The goal of course is to mainstream him into kindergarten on time. Here's hoping!
 
Whelp, another one of kids was diagnosed with autism today.

This is getting out of hand.

One of yours? I'm not sure if I understand exactly what you wrote, but my understanding is that ASD runs in families due to an unexplained genetic component. Without doing any further testing, our specialist informed us we would have at least a 1/4 chance of any additional children being on the spectrum. If a future child was a boy, the odds would be greater.

We are friends with several families in the same situations as us, and from a purely observational standpoint it holds true. Three of the families have multiple boys, and every one of them is somewhere on the spectrum. One mother confessed she became filled with dread upon finding out that her second and third children were male.

Not to dissuade anyone with a kid on the spectrum from having more children. That's entirely for the parents to decide based on a large number of factors. In our particular case, we've decided not to have additional kids and spend all our time, effort, and money towards helping him as much as we can.

--------

On a separate note regarding mini-victories and milestones: last Saturday, we took our boy to his first ever movie. He turned four earlier in the month and we thought it was time for the movie theater experience, but we had several apprehensions about how he would handle himself. He shows very limited interest in TV at home, preferring to play outside, read books, play fetch with the dog, or play with his toys.

So...back to the movie. They have sensory-friendly shows for kids with autism once per month, but we wanted to try a regular matinee showing. We picked an older movie (Planes 2) and the earliest showing of the day, to avoid large crowds.

It was an awesome experience. There were a dozen or so people at the showing, and he was the best behaved kid there. He ate way too much popcorn and loved the show. Most parents would laugh at a parent celebrating taking their kid to a movie, but it was a big deal for us. We're going to start making a monthy or bi-weekly deal out of it.
 
One of yours? I'm not sure if I understand exactly what you wrote, but my understanding is that ASD runs in families due to an unexplained genetic component. Without doing any further testing, our specialist informed us we would have at least a 1/4 chance of any additional children being on the spectrum. If a future child was a boy, the odds would be greater.

We are friends with several families in the same situations as us, and from a purely observational standpoint it holds true. Three of the families have multiple boys, and every one of them is somewhere on the spectrum. One mother confessed she became filled with dread upon finding out that her second and third children were male.

Not to dissuade anyone with a kid on the spectrum from having more children. That's entirely for the parents to decide based on a large number of factors. In our particular case, we've decided not to have additional kids and spend all our time, effort, and money towards helping him as much as we can.

--------

On a separate note regarding mini-victories and milestones: last Saturday, we took our boy to his first ever movie. He turned four earlier in the month and we thought it was time for the movie theater experience, but we had several apprehensions about how he would handle himself. He shows very limited interest in TV at home, preferring to play outside, read books, play fetch with the dog, or play with his toys.

So...back to the movie. They have sensory-friendly shows for kids with autism once per month, but we wanted to try a regular matinee showing. We picked an older movie (Planes 2) and the earliest showing of the day, to avoid large crowds.

It was an awesome experience. There were a dozen or so people at the showing, and he was the best behaved kid there. He ate way too much popcorn and loved the show. Most parents would laugh at a parent celebrating taking their kid to a movie, but it was a big deal for us. We're going to start making a monthy or bi-weekly deal out of it.

First. Congrats on the movie, that is awesome.
My son that is about the same age can make it through some movies but gets really wiggly and needs to get up and move around.

My 3rd son was diagnosed today. So 2/3 have autism. My 2 sons with autism are nothing alike. So the diagnoses was a complete shock.

As for my oldest son, I'm pretty sure he is dyslexic. This is based on my own observations.
 
First. Congrats on the movie, that is awesome.
My son that is about the same age can make it through some movies but gets really wiggly and needs to get up and move around.

My 3rd son was diagnosed today. So 2/3 have autism. My 2 sons with autism are nothing alike. So the diagnoses was a complete shock.

As for my oldest son, I'm pretty sure he is dyslexic. This is based on my own observations.

Sorry to hear about the tough news, but hopefully you feel more prepared to handle the many challenges and get him the help he needs. It's amazing how different one person on the spectrum is from another. The are six other kids at my son's ABA center at the same time as him, and it's almost like they have completely different diagnosis. We're very fortunate that our little man is high functioning, verbal, highly intelligent, and not self-injurious. Many of the other kids there aren't so fortunate and it breaks my heart.
 
Good to see this thread still going. Congrats on the 1st movie, that is really cool. My son is 3.5 so that will be a while for us.

Definitely true how different kids are. Mine is pretty much nonverbal but expanding his variety of sounds. Still hopeful he will find his voice. He's a positive and happy guy - I know others have challenges much different from what we see.
 
Sorry to hear about the tough news, but hopefully you feel more prepared to handle the many challenges and get him the help he needs. It's amazing how different one person on the spectrum is from another. The are six other kids at my son's ABA center at the same time as him, and it's almost like they have completely different diagnosis. We're very fortunate that our little man is high functioning, verbal, highly intelligent, and not self-injurious. Many of the other kids there aren't so fortunate and it breaks my heart.

Is it weird that the diagnoses doesn't even bother me.

My sons are both high functioning. So it's really not that bad. We'll be reaching out to ABA, since we already having him doing speech.
 
Is it weird that the diagnoses doesn't even bother me.

My sons are both high functioning. So it's really not that bad. We'll be reaching out to ABA, since we already having him doing speech.

Not at all! When we got the diagnosis for our son it was more of a sigh of relief for us. It didn't bother or worry us at all. People would offer their condolences to us and we were like "for what? We still have our beautiful boy, he's healthy and happy and now we can get him the services and help he needs."

I know those people meant well but we weren't devastated by the news. We knew from the time our son was just a few weeks old that something could be up and it was a relief when it was confirmed. We actually walked out of the office feeling really calm and at peace.
 
That's a great mindset from both of you, and in keeping with how my wife and I took it. Our son wasn't any different that day than he had been his previous two and a half years of life. He's still our beautiful, loving boy. :)
 
Guy got into a discussion with men and some of my friends tonight about autism.

"So, autism is a disease, like gay people?"

I.

I didn't know even where to begin with that.
 
Guy got into a discussion with men and some of my friends tonight about autism.

"So, autism is a disease, like gay people?"

I.

I didn't know even where to begin with that.

I don't blame them, the public isn't really informed about autism other than sitcoms mocking it.
 
I was super relieved to get my son's autism diagnosis. I'd rather have a label for it and a bunch of things we can do to help him versus him having problems that no one knows how to handle.

Also: when we told my mom about the diagnosis, she said that he had a much higher chance of being telekinetic. She's an RN. There's ignorance and then there's shit like that.
 
I was super relieved to get my son's autism diagnosis. I'd rather have a label for it and a bunch of things we can do to help him versus him having problems that no one knows how to handle.

Also: when we told my mom about the diagnosis, she said that he had a much higher chance of being telekinetic. She's an RN. There's ignorance and then there's shit like that.

I LOL'd. Brilliant.
 
Also: when we told my mom about the diagnosis, she said that he had a much higher chance of being telekinetic. She's an RN. There's ignorance and then there's shit like that.
That's freaking halarious. We only get the "no he's not, because he does X." It makes me want to punch them.
 
Guy got into a discussion with men and some of my friends tonight about autism.

"So, autism is a disease, like gay people?"

I.

I didn't know even where to begin with that.

My son(developmentally behind) just turned 3 and can already recite the alphabet and read all the letters. He could do it before he turned 3.

One of my wife's friends said (paraphrasing):

"Oh that's a symptom of Asperger's Syndrome ... but that's good news at least he's not autistic!".
 
I've been wanting to join in but it doesn't seem like any gaffers with ASD are actually posting here. Anyone?
 
Taking my kids to a football game this weekend. My 4 yr old is autistic and my 2 1/2 was just diagnosed. I also have neurotypical 6 yr old.
Is this a good idea or bad idea.
 
Taking my kids to a football game this weekend. My 4 yr old is autistic and my 2 1/2 was just diagnosed. I also have neurotypical 6 yr old.
Is this a good idea or bad idea.
Depends. We are always prepared to leave if things get rough.
 
Taking my kids to a football game this weekend. My 4 yr old is autistic and my 2 1/2 was just diagnosed. I also have neurotypical 6 yr old.
Is this a good idea or bad idea.

I think it's a very good idea. Just go into it with the mindset that things won't be perfect and you'll have to be flexible in your response.

Our idea is to expose our son to all sorts of new experiences, both in and out of his comfort zone. Things might be rough the first time, but that initial exposure can make the next attempt all the better.
 
Is it weird that the diagnoses doesn't even bother me.

No.

Taking my kids to a football game this weekend. My 4 yr old is autistic and my 2 1/2 was just diagnosed. I also have neurotypical 6 yr old.
Is this a good idea or bad idea.

Be more prepared to leave than stay.

I've been wanting to join in but it doesn't seem like any gaffers with ASD are actually posting here. Anyone?

Tons of us do, you just need to read the backposts.

I don't blame them, the public isn't really informed about autism other than sitcoms mocking it.

What sitcoms mock it?
 
Guy got into a discussion with men and some of my friends tonight about autism.

"So, autism is a disease, like gay people?"

I.

I didn't know even where to begin with that.
I find myself saying "It never ceases to amaze me..." a lot! Unfortunately it's still a fact that so many people don't really understand what autism is. And they just go with the flow of what they think or what they heard someone say about it. I've also had someone compare being gay to her disabled son that passed away and that one day they will all stand before god and be cured and free. I. I just. Wow!

I was super relieved to get my son's autism diagnosis. I'd rather have a label for it and a bunch of things we can do to help him versus him having problems that no one knows how to handle.

Also: when we told my mom about the diagnosis, she said that he had a much higher chance of being telekinetic. She's an RN. There's ignorance and then there's shit like that.
I'm sorry! I know I shouldn't but I couldn't help but laugh! Oh my god! Wow! That is hilarious! But in all honesty I wish there would be as much talk and awareness for autism as there is for breast cancer. I also wish that there would be as many people willing to listen to the discussion on autism that way a lot of this could be cleared up.

I think it's a very good idea. Just go into it with the mindset that things won't be perfect and you'll have to be flexible in your response.

Our idea is to expose our son to all sorts of new experiences, both in and out of his comfort zone. Things might be rough the first time, but that initial exposure can make the next attempt all the better.

I agree with you. That is our plan as well. I think it's important to expose our son to many different things. Some days he does just fine with one thing and other days it's just too much for him and we have to adjust our plans. But I think it's better than just keeping him home all the time. :)
 
I've been wanting to join in but it doesn't seem like any gaffers with ASD are actually posting here. Anyone?

I don't regularly encounter situations where I feel it's had an impact substantial enough to warrant a post in this thread as I, fortunately, feel that I'm quite good at compensating for the negative aspects in some form and in adapting to social expectations (even if internally I am trembling and screaming in sheer terror, while constantly re-analysing and updating the situation and considering many potential scenarios which generally result in me being rather quite or heavily focusing upon sarcastic or dessert-dry humour).

Yesterday however there was a "Disability Access Route to Education" orientation for students on the Autism Spectrum at the college I'm about to attend and it was an eye-opening experience, both in the sheer quantity of potential support, and in meeting others with Asperger's Syndrome (one doing Medicine, one doing Physics, three doing various types of Arts degrees). While three of them (one Arts student who happens to live near me [and absolutely saved me at the bus stop, as I was unaware they only accepted coins and not notes as I had and was about to miss the bus, she revealed that she had a "free travel card and companion pass" allowing me to get the bus for free and not b stranded and miss my train], the Medicine student, and the Physics student) seemed quite high-functioning and clearly had developed effective strategies to minimise the deficits, the other two were much lower functioning, far less able to pick up on social cues present, asking what the three others (now who I would consider friends) and I would have considered 'self-explanatory questions', far more talkative even when interest had waned as they never stopped talking for the entirety of the day, much more blunt and insulting in their comments (upon coming across a church on the campus tour, one stating something akin to "it was an interesting choice having the science building next to the church given how religious people are dummies, lulz" and the other screaming "this is the worst food I've ever tasted" in the centre of the science building's canteen while overlooking how they have to live there for four years, how it was hyperbolic, how rude it was, and how bad of an idea it was to blurt that out in a room full of peers [as other DARE applicants were present at lunch]), possessing an extremely erratic set of body movements, having quite poor co-ordination, and constantly altering their speech pattern in a manner that made it very difficult to understand them. I've never seen another individual with autism in person before, and I guess had never really considered just how fortunate I am that I am able to cope and am quite high functioning.

For anybody interested in what the day entailed, the following album contains everything that was done during the day: http://imgur.com/a/cEaVm. *I had typed a summary of what the day entailed, but it was faily uninteresting. Overall I found the day very enjoyable and beneficial, primarily due to the tour of the campus and the three potential friendships that I may have formed as everyone began to relax from the tour until the end of the day*
 
What sitcoms mock it?

I mean its not just limited to sitcoms but from the top of my head I can just ramble some random tv shows.

Big Bang Theory, Derek, Community, House, Sherlock, Glee, South Park, The Middle, Silicon Valley, Bobs Burgers etc..

I mean its been a trend for a while to play a bit with it.

Taking my kids to a football game this weekend. My 4 yr old is autistic and my 2 1/2 was just diagnosed. I also have neurotypical 6 yr old.
Is this a good idea or bad idea.

I would say its a fairly good idea. I don't think sheltering them is going to do anything good but if they are sensitive to noise etc you might wanna bring earplugs etc (I'm sure you already thought this through so this advice is prolly shit).

Either way my mom always forced me to try new things and I hated her for it at the time but the older I get the more I realized how good it really was for me. It made me more comfortable with certain settings and situations. I try to put myself out of the comfort zone a lot, its always so awkward and horrible the first time but it gets better and better.
 
I mean its not just limited to sitcoms but from the top of my head I can just ramble some random tv shows.

Big Bang Theory, Derek, Community, House, Sherlock, Glee, South Park, The Middle, Silicon Valley, Bobs Burgers etc..

Okay.

First of all, none of those shows are mocking autism or Asperger's.

Big Bang Theory is just awful.

Second of all:

Dereck and Community have characters with AS and autism, so what? Now there can't be shows with characters that have autism? Are you going to list Parenthood next?

House and Sherlock, both characters are geniuses.

Glee. Making fun of people that play the autism card.

South Park. Making fun of misdiagnosis.

Silicon Valley. Again: geniuses.

It really seems like you just have a problem with television having autistic characters in general.
 
It really seems like you just have a problem with television having autistic characters in general.

God no, I think parenthood dealt with it pretty perfectly but sure maybe "mocking" was the wrong term. I meant more the fact its using the "autism" for a joke etc.

I don't really have a problem with it I just find its a new trend that's going on.
 
There is undeniably a stigma surrounding Aspergers. I did not get diagnosed until early this year because of it. I was fairly sure I had plenty of its traits for many years but I constantly saw what basically anyone under 30 thought of the syndrome. I am glad the whole thing is being redefined and the old loaded term being thrown away, but there's definitely still lots of public education needed.

What I dislike the most is how hung up people get on the empathy thing, like this is the single most defining aspect. I'm not really buying it. When I got my own diagnosis, they concluded I don't have any particular difficulties empathising with others. Diagnosed people are going to be just as diverse as anyone else, and sociopathic tendencies is just as common among "neurotypical" people. They're just more skilled at hiding it.
 
That's freaking halarious. We only get the "no he's not, because he does X." It makes me want to punch them.

Man, this used to INFURIATE me; "He's just shy". I know that the people who say it mean well but it really rubbed me the wrong way, I kind of felt like they were dismissing him. Hard to explain.

Taking my kids to a football game this weekend. My 4 yr old is autistic and my 2 1/2 was just diagnosed. I also have neurotypical 6 yr old.
Is this a good idea or bad idea.

Go with the flow, if you can stay the whole time great, if you have to leave after 5 minutes so be it.
 
Yesterday however there was a "Disability Access Route to Education" orientation for students on the Autism Spectrum at the college I'm about to attend and it was an eye-opening experience, *
Busy day! Actually I'm glad to hear that colleges are doing this now. The idea of orientation isn't anything new but knowing they do one geared toward students with autism I think is really great. I hope this becomes more universal in years to come.
 
Why? Because I have a different opinion than you? I'm just trying to have a dialogue.

Trying to have a dialogue by implying I have a problem with autistic characters and then sighing when I tried to explain I don't and its not to do with characters per say?

Either way I certainly don't have a problem with shows that have autistic characters but I noticed that in recent year whenever a character is "quirky" they are quick to speculate whether he/she has aspergers etc. Which then of course becomes the joke, maybe even joke about how the name sounds like "Assburger".

Now I don't know why you think I have a problem with it, just pointed it out since its how a lot of people hears about it.

If this don't clear it up then I have no idea what we're talking about really.
 
Well my 3 year old just got diagnosed with ASD. I got a lot of reading to do, among other things.
If you have any questions, this is a great brain trust here that has been extremely helpful.

Also, was her just diagnosed with ASD or was it ASD plus other things? My son has ASD plus poor verbal skills. My other son was pretty diagnosed with ASD, but we need to have him reevaluated by developmental ped.

Good luck.
 
There is undeniably a stigma surrounding Aspergers. I did not get diagnosed until early this year because of it. I was fairly sure I had plenty of its traits for many years but I constantly saw what basically anyone under 30 thought of the syndrome. I am glad the whole thing is being redefined and the old loaded term being thrown away, but there's definitely still lots of public education needed.

What I dislike the most is how hung up people get on the empathy thing, like this is the single most defining aspect. I'm not really buying it. When I got my own diagnosis, they concluded I don't have any particular difficulties empathising with others. Diagnosed people are going to be just as diverse as anyone else, and sociopathic tendencies is just as common among "neurotypical" people. They're just more skilled at hiding it.

Yeah, I find the general idea that people with aspergers can't feel or understand empathy pretty insulting. If anything, I over-analyse things too much and end up becoming emotionally sensitive to things most people wouldn't get hung up over. Some people might say that if you have aspergers and you fall back on the 'struggling to relate to people' excuse as a way out of being rubbish at emphasising it's a copout, but it's as equally a copout to associate sociopathy with those who don't necessarily and intuitively know all the rules of the social game. If anything I find it's the people who tend to take that game more seriously than others who are usually the most sociopathic. The ones who know how to say the right thing and manipulate people into doing things for them.
 
If you have any questions, this is a great brain trust here that has been extremely helpful.

Also, was her just diagnosed with ASD or was it ASD plus other things? My son has ASD plus poor verbal skills. My other son was pretty diagnosed with ASD, but we need to have him reevaluated by developmental ped.

Good luck.

I got so many questions that I don't even know where to begin. I need to read the package I got as I am still in shock and my wife is taking it even harder, I thought she was going to punch the pediatrician's lights out.

The diagnosis is just ASD, I'm not really sure what it means yet, he seems kind of mild in the grand scheme of things but I know he has challenges and he's different than other kids.
 
Trying to have a dialogue by implying I have a problem with autistic characters and then sighing when I tried to explain I don't and its not to do with characters per say?

Either way I certainly don't have a problem with shows that have autistic characters but I noticed that in recent year whenever a character is "quirky" they are quick to speculate whether he/she has aspergers etc. Which then of course becomes the joke, maybe even joke about how the name sounds like "Assburger".

Now I don't know why you think I have a problem with it, just pointed it out since its how a lot of people hears about it.

If this don't clear it up then I have no idea what we're talking about really.

Some people have a problem with "outsiders" displaying any kind of recognition of Their Thing. No matter the context. It's a knee jerk reaction.
 
I got so many questions that I don't even know where to begin. I need to read the package I got as I am still in shock and my wife is taking it even harder, I thought she was going to punch the pediatrician's lights out.

The diagnosis is just ASD, I'm not really sure what it means yet, he seems kind of mild in the grand scheme of things but I know he has challenges and he's different than other kids.
Yeah, it's a tough time, I struggled. 3 years old is early though and he'll likely make good progress because of that. Reach out to your state/local agencies, they were a godsend for us.
 
http://m.psychologytoday.com/blog/evolutionary-psychiatry/201104/autism-and-vitamin-d

Anyone hear of Vitamin D deficiency and a link to autism?

I'm a real mess tonight(and probably grasping at straws) trying to come to terms with my son's diagnosis today but he was diagnosed with a severe vitamin D deficiency a few months ago.

I just don't know what to do right now, it even feels my marriage is going off the rails because of this:(
Lots of marriages end after a diagnosis. You guys have to be there for each other. A diagnosis is not a death sentence. Sometimes things will get fustrating, but you just have take it one day at a time.

As for a link that causes autism, take everything you read with a large grain of salt. Most people want to blame something. I personally believe it is genetic based mutation that can't be prevented, but I'm not a geneticist.

Also, services services services. There are tons of free services provided by the state, take advantage of them. My son has flourished because of them.
 
Lots of marriages end after a diagnosis. You guys have to be there for each other. A diagnosis is not a death sentence. Sometimes things will get fustrating, but you just have take it one day at a time.

As for a link that causes autism, take everything you read with a large grain of salt. Most people want to blame something. I personally believe it is genetic based mutation that can't be prevented, but I'm not a geneticist.

Also, services services services. There are tons of free services provided by the state, take advantage of them. My son has flourished because of them.

100% agree with this post. Our marriage went though a rough time. People tried to tell us everything had caused the situation. Services have been king for our boy.
 
Status
Not open for further replies.
Top Bottom