Autism - Welcome to the Spectrum

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Then he'll suggest, for example, that the next family vacation should be to San Diego Comic-Con

No offense, but he'd get the mental shit kicked out of him at SDCC. He honestly doers not seem like he is prepared at all for a gigantic event like that.

My friend, who is also an Aspie, had a hard time at WonderCon, and said to me that to do SDCC, she'll probably need to take a Valium to be around that many people. I mean, I'm pretty high functioning, but even I get mentally drained at that place.
 
No offense, but he'd get the mental shit kicked out of him at SDCC. He honestly doers not seem like he is prepared at all for a gigantic event like that.

My friend, who is also an Aspie, had a hard time at WonderCon, and said to me that to do SDCC, she'll probably need to take a Valium to be around that many people. I mean, I'm pretty high functioning, but even I get mentally drained at that place.
My son shuts down when there is more than 10 kids around.
 
My son informed me this tonight that he has been having nightmares and he is too scared to sleep in his room by himself. This is a very typical problem for children his age but I'm having trouble getting him to go to sleep because he scared of sleeping alone. Have any of you guys dealt with this yet?

Prior to the nightmares it would take me about 10 minutes to get him to go to bed. now after the nightmares, I can be in his room anywhere from 30 minutes to over an hour trying to calm him down and get him to bed. He has been fighting going to sleep, which is a major issue because he already doesn't get enough sleep for his age.
 
I'm pretty sure my wife has Aspergers.

How old are you, if you want tell? Did you and your family suspect something or was it a third party that suggested you get tested?

36.

Went to a psychiatrist about my lifelong social and anxiety problems. This is the first time in my life I've had any kind of decent insurance. Feels weird. I mean, I know I'm completely different online than I am in person. You just never expect to hear that you're in the spectrum and be able to be conscious of the fact. If that makes any sense.

#thanksObama
 
My son informed me this tonight that he has been having nightmares and he is too scared to sleep in his room by himself. This is a very typical problem for children his age but I'm having trouble getting him to go to sleep because he scared of sleeping alone. Have any of you guys dealt with this yet?

Prior to the nightmares it would take me about 10 minutes to get him to go to bed. now after the nightmares, I can be in his room anywhere from 30 minutes to over an hour trying to calm him down and get him to bed. He has been fighting going to sleep, which is a major issue because he already doesn't get enough sleep for his age.

What are the nightmares about? Maybe its something he could be shown isn't dangerous or talked about?
 
My friend cosplays as Transformers to circumvent it. Surprisingly, it works.

Ya, he goes to conventions and cosplays too.

He seems to be able to deal with crowds, just not loudness.

He'll go to any geek-related thing he sees, even if he has no clue about it.
 
School IEP reports are no where near as good as official testing. My son's school made him sound like he was doing amazing. The Dr basically said nope. It's ok because the dr gave us the areas we need focus on.
 
Big progress this week on my son's potty training. With a full court press at home and at ABA, we now have him fully adjusted to peeing on the toilet. That may sound like nothing, but it's an absolutely MASSIVE milestone for us. He can now go all day wearing underwear instead of a diaper as long as we give him the chance to sit on the pot every 45 minutes or so.

Pooping is a bigger challenge, and he still shows a major aversion to doing it. That's going to be a longer term issue for us to work through, but we're on cloud nine. He turns four this August and we hope to have him fully good to go by then.
 
Big progress this week on my son's potty training. With a full court press at home and at ABA, we now have him fully adjusted to peeing on the toilet. That may sound like nothing, but it's an absolutely MASSIVE milestone for us. He can now go all day wearing underwear instead of a diaper as long as we give him the chance to sit on the pot every 45 minutes or so.

Pooping is a bigger challenge, and he still shows a major aversion to doing it. That's going to be a longer term issue for us to work through, but we're on cloud nine. He turns four this August and we hope to have him fully good to go by then.

That's awesome.
We have been working on potty training my son since 2 1/2. We hit milestones and set backs. But we never give up. He also has a huge issue with pooping and use public restrooms. We still have a ways to go with potty training, but my son constantly amazes me. So I have hope.

Good luck and congrats on the great progress so far.
 
School IEP reports are no where near as good as official testing. My son's school made him sound like he was doing amazing. The Dr basically said nope. It's ok because the dr gave us the areas we need focus on.

IEPs are not doctor visits. I've never understood why parents think they are and teachers act like they are. I mean, that's literally not an IEPs purpose.
 
My son shuts down when there is more than 10 kids around.


I don't shut down, but I do prefer to be in the company of small groups over large ones.

It took a lot out of me to go see paul mccartney, and the beach boys in concert but was completely worth it.
 
I don't shut down, but I do prefer to be in the company of small groups over large ones.

It took a lot out of me to go see paul mccartney, and the beach boys in concert but was completely worth it.

I usually don't shut down either. I'll go into scary-ass Wander Mode before that happens.
 
I usually don't shut down either. I'll go into scary-ass Wander Mode before that happens.
I don't shut down either. I just don't tend to stay where there is a large amount of people for long periods of time. There's only so much I can handle of that.
Finding a slot with less people is a priority for me.
There has to a huge amount of people for that to happen though.
 
Difficulties with my 18 year old step son again. (The one with aspergers and tourettes.)

He seems to have this idea that the world owes him a girlfriend, he's getting angry that he's never had one, and, from what I've overheard him muttering to himself, he's starting to form a deep resentment. (He went to a geek social event yesterday, and was in his room yelling to himself "You think you're better than me?!" when he got home at 1am.) It's gotten worse lately because his 16 year old sister is dating, and he's jealous, and is actually bitter towards her over it.

First, I have no good girl advice for him. I'm awkward myself, and didn't get an actual girlfriend until I was 26. (Although most of my friends have been girls.) Second, girls actually find him creepy, and have called him creepy to his face. I've tried to coach him on how to present himself better, but he ignores or takes offence at anything I say.

I'm frankly worried about where this is going, because this is spilling out into other areas.
 
He seems to have this idea that the world owes him a girlfriend, he's getting angry that he's never had one, and, from what I've overheard him muttering to himself, he's starting to form a deep resentment. (He went to a geek social event yesterday, and was in his room yelling to himself "You think you're better than me?!" when he got home at 1am.)

I've tried to coach him on how to present himself better, but he ignores or takes offence at anything I say.

I'm frankly worried about where this is going, because this is spilling out into other areas.

That's going to get ugly. Fast.

Unfortunately, I have no real advice for you other than to get him into therapy (I forget if he already is?).
 
Difficulties with my 18 year old step son again. (The one with aspergers and tourettes.)

He seems to have this idea that the world owes him a girlfriend, he's getting angry that he's never had one, and, from what I've overheard him muttering to himself, he's starting to form a deep resentment. (He went to a geek social event yesterday, and was in his room yelling to himself "You think you're better than me?!" when he got home at 1am.) It's gotten worse lately because his 16 year old sister is dating, and he's jealous, and is actually bitter towards her over it.

First, I have no good girl advice for him. I'm awkward myself, and didn't get an actual girlfriend until I was 26. (Although most of my friends have been girls.) Second, girls actually find him creepy, and have called him creepy to his face. I've tried to coach him on how to present himself better, but he ignores or takes offence at anything I say.

I'm frankly worried about where this is going, because this is spilling out into other areas.
Sounds like he needs to burn off some of that testosterone.
Also, you are doing good job trying to talk to him. I would say just keep at it. Also, like HP said get him some therapy.
 
That's going to get ugly. Fast.

Unfortunately, I have no real advice for you other than to get him into therapy (I forget if he already is?).
He sees a therapist every couple of months.

Sounds like he needs to burn off some of that testosterone.
Also, you are doing good job trying to talk to him. I would say just keep at it. Also, like HP said get him some therapy.
How's he going to burn off that testosterone? He can't get a date, and he's not into anything remotely athletic. He's set in his ways and impossible to get into anything new... that doesn't involve collecting, anyway.

As for talking to him, I don't do it all that much lately because he doesn't listen and reacts negatively to even the most innocent advice. I could suggest he wear nicer shirts, for example, and he'd take that as a direct personal attack.
 
I just went to this place here that helps people with disabilities find jobs. After some tests they said I have a high IQ, but that my social skills are horrible. They also think my depression is still a problem. They said I need to find a job where I could have someone helping me consistently along the way but they don't know any. They said to just continue my schooling and work towards a bachelor's degree. Not sure what I should do from here. I want to try to move out and go to a college but my mom doesn't think I'm ready and she doesn't want to live alone.
 
I just went to this place here that helps people with disabilities find jobs. After some tests they said I have a high IQ, but that my social skills are horrible. They also think my depression is still a problem. They said I need to find a job where I could have someone helping me consistently along the way but they don't know any. They said to just continue my schooling and work towards a bachelor's degree. Not sure what I should do from here. I want to try to move out and go to a college but my mom doesn't think I'm ready and she doesn't want to live alone.

Don't live alone if you can't afford to, mentally or financially.
 
Do you do it in a soft tone or in kind of a commanding tone?

As kind a tone as I can muster, given that I have a deep voice.

But it doesn't really matter, because he takes everything personally regardless.

He had a horrible, angry meltdown this weekend because his aunt cheered for the opposite team that he was "cheering for" during the World Cup final, and he doesn't even care about sports. Not one bit. He was only watching it because everyone else was. But he said he felt "betrayed", raised a huge, dramatic stink, ended up laying on his back on the floor in protest (keep in mind he's 18yo, 6'2", and 250lb), and had to be sent home so we could watch the rest of the game.

After his mom went home to check on him, his grandma and aunt talked to me about him for about half an hour because they're concerned he's getting worse, are worried he could do something in public to get arrested. But everyone's afraid to talk to his mom about it because she's very, very protective of him.


It's really gotten stressful for me lately.
 
As for talking to him, I don't do it all that much lately because he doesn't listen and reacts negatively to even the most innocent advice. I could suggest he wear nicer shirts, for example, and he'd take that as a direct personal attack.
May I ask if he is rather bullheaded? I'm rather bullheaded and I get so angry sometimes when people tell me what to do about myself. Although it probably seems silly it makes me feel inferior when it happens as deep down I know they are right but I cannot accept it.
 
I'll have to bookmark this thread and read through it. Still up in the air with my (almost) 3 year old and whether he is ASD or not.

Doctor only said he is "different" so far.
 
I'll have to bookmark this thread and read through it. Still up in the air with my (almost) 3 year old and whether he is ASD or not.

Doctor only said he is "different" so far.
Get him tested. Do not fuck around. If he is on the spectrum, please get him the help he needs. My son has been doing so much better since he started all of his therapies and preK.
He's an amazing kid and I couldn't imagine life without him, ASD and all.
 
Get him tested. Do not fuck around. If he is on the spectrum, please get him the help he needs. My son has been doing so much better since he started all of his therapies and preK.
He's an amazing kid and I couldn't imagine life without him, ASD and all.

He is getting tested and he's getting speech and occupational therapy. We've been on waiting lists since he was 18 months. He's shown a lot of progress.

We had one visit with the pediatrician no diagnosis yet. Even had genetic testing to make sure it's not something else. Waiting on a followup visit now.

Just frustrating not knowing what/if anything is wrong.
 
He is getting tested and he's getting speech and occupational therapy. We've been on waiting lists since he was 18 months. He's shown a lot of progress.

We had one visit with the pediatrician no diagnosis yet. Even had genetic testing to make sure it's not something else. Waiting on a followup visit now.

Just frustrating not knowing what/if anything is wrong.
That waiting list is insane.
Where do you live?
Awesome that you are getting him speech and OT.
 
May I ask if he is rather bullheaded? I'm rather bullheaded and I get so angry sometimes when people tell me what to do about myself. Although it probably seems silly it makes me feel inferior when it happens as deep down I know they are right but I cannot accept it.

Oh yes he is. Very much so. It's a family trait.
 
He sees a therapist every couple of months.


How's he going to burn off that testosterone? He can't get a date, and he's not into anything remotely athletic. He's set in his ways and impossible to get into anything new... that doesn't involve collecting, anyway.

As for talking to him, I don't do it all that much lately because he doesn't listen and reacts negatively to even the most innocent advice. I could suggest he wear nicer shirts, for example, and he'd take that as a direct personal attack.
I'd get him into weekly therapy. The therapist would probably uncover communication issues he has with you and advise him on having a better relationship there.

If you're not talking to him much and when you do it's something he needs to better about himself or as a cohabitant, he probably always expects something negative out of you. I'd try to go a week without critism or construtive feedback to get something positive going. Shoot the shit.
 
I think, for the most part , that my son is potty trained.
He still needs to be reminder/monitored for when he goes to the bathroom. But we haven't used a diaper or pull-up in over month. He's still reluctant on going in public but no where near as bad as he used to be.
 
I think, for the most part , that my son is potty trained.
He still needs to be reminder/monitored for when he goes to the bathroom. But we haven't used a diaper or pull-up in over month. He's still reluctant on going in public but no where near as bad as he used to be.

Congratulations! I think we're just a small step ahead of you guys on what has been an arduous journey. My son turns four in a little over two weeks and is good to go on peeing in the toilet now with gentle reminders every hour or so. We still put him in a pull up at night, but he has stayed dry through the night for almost a month now. He has no issue going on any toilet, which surprised me.

Pooping continues to be more challenging, but we've started seeing success the past week. We have to be a bit more stern on that front, since he makes a scene and refuses to go. I've had to teach him how to squeeze by making faces and noises (LOL) but he understands the concept now.

I'll be so happy when we finish this whole process, as it's another crucial step towards independence for him.
 
Had a huge meltdown tonight. Tore something in my leg.

I'm in no position to look for work, I've got my disability hearing coming up in September, and my boss just tonight gave me a month's "vacation!" (complete with exclamation point). There were.... other... factors which made it so much more insulting and demeaning that I won't get into just because it's internal company bullshit. I gave you guys the basics, and what makes it pertinent to this thread.

I am in no position to not have an income for a few months, which is what will happen if I quit on Friday after getting my last paycheck (assuming he does not snake out of that as well). This guy wrote the judge a letter months ago. He fully understands my situation. So the fact that he goddamn does this without any regard for me (plus writing the e-mail so it sounds like he's doing me a favor) is bullshit.

I was in the corner for thirty minutes in a ball. Fuck this, I'm 31.

Then again, not having a job would definitely help my case. I can't even goddamn joke about that. This is bullshit.
 
Had a huge meltdown tonight. Tore something in my leg.

I'm in no position to look for work, I've got my disability hearing coming up in September, and my boss just tonight gave me a month's "vacation!" (complete with exclamation point). There were.... other... factors which made it so much more insulting and demeaning that I won't get into just because it's internal company bullshit. I gave you guys the basics, and what makes it pertinent to this thread.

I am in no position to not have an income for a few months, which is what will happen if I quit on Friday after getting my last paycheck (assuming he does not snake out of that as well). This guy wrote the judge a letter months ago. He fully understands my situation. So the fact that he goddamn does this without any regard for me (plus writing the e-mail so it sounds like he's doing me a favor) is bullshit.

I was in the corner for thirty minutes in a ball. Fuck this, I'm 31.

Then again, not having a job would definitely help my case. I can't even goddamn joke about that. This is bullshit.

ugh

I know what it's like to get injured at work and be at odds end with bosses who care more about making the company look good over the well being of employees.

Just remember, that things can get better. You might feel like giving up, you might feel like crying, you might even feel like doing some drastically dangerous things but just remember that there are people like you who have been in similar situations.

I know what it's like dealing with people who don't understand autism, it's frustrating. You might be the nicest person in the world but you slip up once and people think lesser of you.

Just don't give up, for me okay?
 
I know what it's like to get injured at work and be at odds end with bosses

No. I tore my leg due to me moving so fast.

Him giving me time off is just him. It has nothing to do with my autism.

I was just talking about my situation.

But thanks. I just need to drastically be careful money-wise. Who the fuck knows if I'm going to have work after my "vacation!". Who the fuck knows if I'm even going to quit on Friday. I live with my mom, pay rent when I can, and my car is really not reliable since three people live here. Plus I don't drive highways. He simply does not give a shit. The worst part is that he's completely oblivious to what an asshole he can be. There's a reason why I don't ever see him anymore face to face. I can work fine through my computer.

I got a retail job last Halloween and he was so upset that I had taken a second job. As if it would take away from the small number of hours that I work for him. He just gets so... angry... that I don't consider this job my entire life. It offends him. Even when I come to him with a simple question, or tell him that I think something he said was offensive, he goes "I can't control how you feel". I was simply telling him that I feel like he is putting down my pursuits and dreams and my own start up whenever he talks about any of that (because he is, he's the most oblivious passive-aggressive person I've ever met). He keeps finding ways of starting conversations where he tells me that I'm ruining my life by pursuing creative arts, and he keeps doing so in completely new and patronizing ways. His latest was asking me "what do you do all day besides work on your video game?". My response: "well, the game and my hearing are basically taking up my entire year". "Wrong answer: you're supposed to say X is your entire life". "Well, yeah, it's my job" - to which he made a face of complete shock and disbelief and fed-up annoyance. Then he let me have a piece of his mind. So of course he just expects me to wait for him to tell me he has work for me again.
 
No. I tore my leg due to me moving so fast.

Him giving me time off is just him. It has nothing to do with my autism.

I was just talking about my situation.

But thanks. I just need to drastically be careful money-wise. Who the fuck knows if I'm going to have work after my "vacation!". Who the fuck knows if I'm even going to quit on Friday. I live with my mom, pay rent when I can, and my car is really not reliable since three people live here. Plus I don't drive highways. He simply does not give a shit. The worst part is that he's completely oblivious to what an asshole he can be. There's a reason why I don't ever see him anymore face to face. I can work fine through my computer.

I got a retail job last Halloween and he was so upset that I had taken a second job. As if it would take away from the small number of hours that I work for him. He just gets so... angry... that I don't consider this job my entire life. It offends him. So of course he just expects me to wait for him to tell me he has work for me again.

what do you enjoy most in life? do something simple like listening to a song that makes you happy. maybe rewatch a movie that you love.

I have felt angry, really angry at life but I eventually let go of most of my baggage. things can get better. it might not seem like it now, but, if and when things do get better you'll feel better for it.
 
And SSI just denied me a piggyback on my hearing because - get this - I have a ROTH IRA that I can't touch until I'm 50.

This shit just keeps getting so good.
 
And SSI just denied me a piggyback on my hearing because - get this - I have a ROTH IRA that I can't touch until I'm 50.

This shit just keeps getting so good.
Jesus HP. That sucks.

So do you work part time for this guy or full time? Also, can you get a job somewhere else? If he lets you go, can you get unemployment ?

This guy sounds like a dick hole.
 
That waiting list is insane.
Where do you live?
Awesome that you are getting him speech and OT.

I'm in Canada, he's progressing in the right direction so far.

... I have nothing to say that that. A medical professional said this?

Pediatrician actually only said his use of language is different. Kind of hard to explain but he is improving.

They haven't diagnosed anything right now.

If he is ASD it would have to be something like PDD-NOS(only based on my own reading on the subject).
 
And SSI just denied me a piggyback on my hearing because - get this - I have a ROTH IRA that I can't touch until I'm 50.

This shit just keeps getting so good.

If it's just a regular Roth IRA, that's not true. You can remove the entire amount you've contributed penalty-free. You can also remove any gains or interest earned, but it is rather heavily penalized.
 
Jesus HP. That sucks.

So do you work part time for this guy or full time? Also, can you get a job somewhere else? If he lets you go, can you get unemployment ?

This guy sounds like a dick hole.

The plan was to look for a second job after I got disability. I don't need the added stress and I want to maximize my chances of getting benefits.

All in all, I'm in pretty good shape. Low-paying (now no-paying?) stay at home job. Therapy once a week. Getting a nutritionalist and having Stanford do Genome testing on me. If I get denied purely based on HFA (high functioning), I'll be pissed.
 
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