888
Member
Possibly some gross details but it's part of the disease.
So I have discussed my issue with Crohns/UC on this board. It started years ago but was only involving a small portion of the Colon. Got it under control with some Steroids and 5ASA drugs. I had minor occurrences with it over the past 4 years since. Anyone who knows the symptoms of it, it isn't pretty or comfortable. After a trip to NY I got sick with something unrelated that led to Antibiotics. That kicked off a massive flare. It involved the whole Colon and was very severe. That started around Sept 2018. I was subjected to high doses of Prednisone, Topical Steroid Foams and enemas, GI based Steroids, 5ASA drugs, Biologics along with a heap of natural supplements such as Vit D, Omega 3, Turmeric, Colostrum, Boswellia etc. Fasting is also a pretty common thing for me.
I was able to get the inflammation down enough to not go to the bathroom 15 times a day with the results of massive amounts of blood and other unpleasant stuff. But I still am fighting with the left side of the Colon that is still inflamed and ulcerated.
As most people would do in this situation, I researched all sorts of articles on it, scientific and anecdotal. I even mixed up this fancy herb enema that totally stopped the bleeding but it only worked sometimes and it felt like my body was adjusting to it. But either way things have been at a stand still for a while but It certainly isn't as bad as it started. I've been looking for the one thing to just squash the last bit of my troubles.
I ran across a guy online that had Crohns that was a Pharmacist that recommended Kratom in small amounts in a certain strain. I said why not, I am very open to trying things. So I ordered some and it came in Friday. The day before I blacked out from a Med and I was rushed to the ER, this may be have played a part but ill come back to it.
So Friday night I mixed the Kratom in some water and downed it quick. At this point I was putting out a lot of Blood and Mucus, up to 5 times a day. Saturday, I felt generally better and forgot I took the Kratom, the side pain was diminished and I wasn't in the bathroom as much. Symptoms in general were diminished. When I was taking my pills for the night I saw the Kratom and said hey I forgot about that. So I took another dose.
Sunday rolled around and I woke up and hit the bathroom like usual. For the first time in 7 months everything was normal! I was like holy crap this is different. For the first time there wasn't any of the extra stuff that I had become accustomed to. I chalked it up to a fluke, well the trend stayed all day Sunday and all day today.
I am not taking much Kratom, 1/4 Tsp in Water one time a day.
So the only changes to my Routine was the Black out from the med where I blacked out for 5 mins and the Kratom. One of the reasons why I find the blackout interesting is due to some reading about how the Brain could play a role in IBD. The Doctor confirmed I wasn't getting enough blood flow to the brain due to a huge drop in Blood Pressure. This is a far stretch but it would be interesting to think that it could have acted like a reboot on the Brain Gut connection.
The only actual Med I have been on is the GI Steroid, the Infusion wore off week and weeks ago. No diet changes. I am more leaning towards the Kratom than the brain theory. I am going to keep up on it and see if it maintains.
Sorry for the long winded post, just excited to feel like a normal person after a long 7 months of feeling awful and being unable to play with my kids without the constant reminder of the pain and issues.
So I have discussed my issue with Crohns/UC on this board. It started years ago but was only involving a small portion of the Colon. Got it under control with some Steroids and 5ASA drugs. I had minor occurrences with it over the past 4 years since. Anyone who knows the symptoms of it, it isn't pretty or comfortable. After a trip to NY I got sick with something unrelated that led to Antibiotics. That kicked off a massive flare. It involved the whole Colon and was very severe. That started around Sept 2018. I was subjected to high doses of Prednisone, Topical Steroid Foams and enemas, GI based Steroids, 5ASA drugs, Biologics along with a heap of natural supplements such as Vit D, Omega 3, Turmeric, Colostrum, Boswellia etc. Fasting is also a pretty common thing for me.
I was able to get the inflammation down enough to not go to the bathroom 15 times a day with the results of massive amounts of blood and other unpleasant stuff. But I still am fighting with the left side of the Colon that is still inflamed and ulcerated.
As most people would do in this situation, I researched all sorts of articles on it, scientific and anecdotal. I even mixed up this fancy herb enema that totally stopped the bleeding but it only worked sometimes and it felt like my body was adjusting to it. But either way things have been at a stand still for a while but It certainly isn't as bad as it started. I've been looking for the one thing to just squash the last bit of my troubles.
I ran across a guy online that had Crohns that was a Pharmacist that recommended Kratom in small amounts in a certain strain. I said why not, I am very open to trying things. So I ordered some and it came in Friday. The day before I blacked out from a Med and I was rushed to the ER, this may be have played a part but ill come back to it.
So Friday night I mixed the Kratom in some water and downed it quick. At this point I was putting out a lot of Blood and Mucus, up to 5 times a day. Saturday, I felt generally better and forgot I took the Kratom, the side pain was diminished and I wasn't in the bathroom as much. Symptoms in general were diminished. When I was taking my pills for the night I saw the Kratom and said hey I forgot about that. So I took another dose.
Sunday rolled around and I woke up and hit the bathroom like usual. For the first time in 7 months everything was normal! I was like holy crap this is different. For the first time there wasn't any of the extra stuff that I had become accustomed to. I chalked it up to a fluke, well the trend stayed all day Sunday and all day today.
I am not taking much Kratom, 1/4 Tsp in Water one time a day.
So the only changes to my Routine was the Black out from the med where I blacked out for 5 mins and the Kratom. One of the reasons why I find the blackout interesting is due to some reading about how the Brain could play a role in IBD. The Doctor confirmed I wasn't getting enough blood flow to the brain due to a huge drop in Blood Pressure. This is a far stretch but it would be interesting to think that it could have acted like a reboot on the Brain Gut connection.
The only actual Med I have been on is the GI Steroid, the Infusion wore off week and weeks ago. No diet changes. I am more leaning towards the Kratom than the brain theory. I am going to keep up on it and see if it maintains.
Sorry for the long winded post, just excited to feel like a normal person after a long 7 months of feeling awful and being unable to play with my kids without the constant reminder of the pain and issues.