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In my search for relief, I found something

888

Member
Possibly some gross details but it's part of the disease.

So I have discussed my issue with Crohns/UC on this board. It started years ago but was only involving a small portion of the Colon. Got it under control with some Steroids and 5ASA drugs. I had minor occurrences with it over the past 4 years since. Anyone who knows the symptoms of it, it isn't pretty or comfortable. After a trip to NY I got sick with something unrelated that led to Antibiotics. That kicked off a massive flare. It involved the whole Colon and was very severe. That started around Sept 2018. I was subjected to high doses of Prednisone, Topical Steroid Foams and enemas, GI based Steroids, 5ASA drugs, Biologics along with a heap of natural supplements such as Vit D, Omega 3, Turmeric, Colostrum, Boswellia etc. Fasting is also a pretty common thing for me.

I was able to get the inflammation down enough to not go to the bathroom 15 times a day with the results of massive amounts of blood and other unpleasant stuff. But I still am fighting with the left side of the Colon that is still inflamed and ulcerated.

As most people would do in this situation, I researched all sorts of articles on it, scientific and anecdotal. I even mixed up this fancy herb enema that totally stopped the bleeding but it only worked sometimes and it felt like my body was adjusting to it. But either way things have been at a stand still for a while but It certainly isn't as bad as it started. I've been looking for the one thing to just squash the last bit of my troubles.

I ran across a guy online that had Crohns that was a Pharmacist that recommended Kratom in small amounts in a certain strain. I said why not, I am very open to trying things. So I ordered some and it came in Friday. The day before I blacked out from a Med and I was rushed to the ER, this may be have played a part but ill come back to it.

So Friday night I mixed the Kratom in some water and downed it quick. At this point I was putting out a lot of Blood and Mucus, up to 5 times a day. Saturday, I felt generally better and forgot I took the Kratom, the side pain was diminished and I wasn't in the bathroom as much. Symptoms in general were diminished. When I was taking my pills for the night I saw the Kratom and said hey I forgot about that. So I took another dose.

Sunday rolled around and I woke up and hit the bathroom like usual. For the first time in 7 months everything was normal! I was like holy crap this is different. For the first time there wasn't any of the extra stuff that I had become accustomed to. I chalked it up to a fluke, well the trend stayed all day Sunday and all day today.

I am not taking much Kratom, 1/4 Tsp in Water one time a day.

So the only changes to my Routine was the Black out from the med where I blacked out for 5 mins and the Kratom. One of the reasons why I find the blackout interesting is due to some reading about how the Brain could play a role in IBD. The Doctor confirmed I wasn't getting enough blood flow to the brain due to a huge drop in Blood Pressure. This is a far stretch but it would be interesting to think that it could have acted like a reboot on the Brain Gut connection.

The only actual Med I have been on is the GI Steroid, the Infusion wore off week and weeks ago. No diet changes. I am more leaning towards the Kratom than the brain theory. I am going to keep up on it and see if it maintains.

Sorry for the long winded post, just excited to feel like a normal person after a long 7 months of feeling awful and being unable to play with my kids without the constant reminder of the pain and issues.
 

888

Member
I’m really glad you’ve found some relief.

I’ve heard about Kratom. I need to research it more, but it’s on my radar.

There is a lot of hub bub about it both good and bad. Like anything else it can be abused but the FDA wants to ban it but people use it for everything from pain to addiction relief. I read there were 45 deaths since 2009 but there was a mix of different drugs in their systems along with Kratom. The fact is there are legal substances that take far more lives such as Alcohol and Cigarettes to name two. If this helps me function like a normal person again and not be stuck on some of these Meds that cause all sorts of issues, shoot one that I am on says it can cause Hepatitis. Screw that.
 
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Uhtred

Member
If anyone has a cure for chronic prostatitis , please share, I've been suffering greatly for more than a year. Im working with my urologist, and while anti inflams greatly help, I cant be on them for ever. I have another appointment on Friday to maybe try something else.
 

888

Member
If anyone has a cure for chronic prostatitis , please share, I've been suffering greatly for more than a year. Im working with my urologist, and while anti inflams greatly help, I cant be on them for ever. I have another appointment on Friday to maybe try something else.

Are you taking any natural anti inflammatory supplements? If you don’t have a bleeding problem try Turmeric. I mention the bleeding because Turmeric can thin blood a bit.
 

Rentahamster

Rodent Whores
Why don't you look into getting a poop transplant? If antibiotics caused a flare up, your gut bacteria might be in a state of disarray.

Not even joking about the poop transplant. Google it.
 

888

Member
Why don't you look into getting a poop transplant? If antibiotics caused a flare up, your gut bacteria might be in a state of disarray.

Not even joking about the poop transplant. Google it.

Yeah FMTs. I would totally do it. But I think they only do it in the US for C Diff patients.

One of the things I have been doing is lots of probiotics from drinks like kefir etc. Good bacteria being destroyed for sure is a massive part of this disease.
 

Rentahamster

Rodent Whores
Yeah FMTs. I would totally do it. But I think they only do it in the US for C Diff patients.

One of the things I have been doing is lots of probiotics from drinks like kefir etc. Good bacteria being destroyed for sure is a massive part of this disease.
Low sugar yogurt, good quality kimchi, and a high fiber diet might help.

Or maybe you can move to Canada and join this study group

https://clinicaltrials.gov/ct2/show/NCT03078803
 
One of the things I have been doing is lots of probiotics from drinks like kefir etc. Good bacteria being destroyed for sure is a massive part of this disease.
Good. Are you making it yourself? I only ask because the probiotics in homemade are significantly higher. Plus, you can use the milk kefir grains to pickle other veggies for bonus probiotics. The grains themselves can also be eaten raw. Similar texture as large-curd cottage cheese.

I don't have Crohns but I've heard some sufferers alleviated their symptoms gradually over time with a steady diet of milk kefir.

I'd also recommend homemade sauerkraut, if you can stomach it.
 

888

Member
Good. Are you making it yourself? I only ask because the probiotics in homemade are significantly higher. Plus, you can use the milk kefir grains to pickle other veggies for bonus probiotics. The grains themselves can also be eaten raw. Similar texture as large-curd cottage cheese.

I don't have Crohns but I've heard some sufferers alleviated their symptoms gradually over time with a steady diet of milk kefir.

I'd also recommend homemade sauerkraut, if you can stomach it.


I haven’t done homemade yet but I’m close. I’ve been buying the lifeway brand plain. Mixing it with Blueberries and Bananas. So it’s a mix of Antioxidants, Fiber (Prebiotics) and Keifr.

I love sauerkraut and have been looking up how to make it at home. It seems easy.

I also haven’t done milk in over a year until I found a local farm that sells Raw Milk. I drank 3 gallons with zero issues. Even my sister who is deathly allergic to milk drank some and didn’t react to it at all.

Now that I’m not bleeding to death I’m going to add in more fibers than I have. I have to be fairly careful not to over do the fiber or it can cause issues. But so far still no bleeding so if it keeps stable I’ll be adding more and more fiber and probiotics.
 
I haven’t done homemade yet but I’m close. I’ve been buying the lifeway brand plain. Mixing it with Blueberries and Bananas. So it’s a mix of Antioxidants, Fiber (Prebiotics) and Keifr.

I love sauerkraut and have been looking up how to make it at home. It seems easy.

I also haven’t done milk in over a year until I found a local farm that sells Raw Milk. I drank 3 gallons with zero issues. Even my sister who is deathly allergic to milk drank some and didn’t react to it at all.

Now that I’m not bleeding to death I’m going to add in more fibers than I have. I have to be fairly careful not to over do the fiber or it can cause issues. But so far still no bleeding so if it keeps stable I’ll be adding more and more fiber and probiotics.
I'm really glad to hear you could find some raw milk. I know a lot of places still don't offer it but I've heard of the positive effects of drinking it regularly.

Milk kefir is totally worth making because it is low effort. Plus, you can make cheese out of it.

'Kraut? Super easy. Why aren't you already making it?

Buy two cabbages and a 1-gallon jar.
Chop cabbage up in ribbons.
Put in a large bowl with about 2 tbsp of salt (I prefer kosher, but any kind is fine) and knead the cabbage in your hands, wringing it and working the salt into the cabbage.
After a few minutes, the cabbage should feel "squeaky" and will darken slightly.
Let sit for 1 hour.
Pack the cabbage into your jar, layering with caraway seeds, top off with clean water and another 1/2 tbsp of salt.
Seal the lid with a ziploc bag with the top inch turned inside out and rubber-banded to the top of the lid. Fill it with water to form a water seal.
Leave out of direct sunlight.
For the first week, push the bag down to force out air bubbles.
Ferment for 1 month total, then refrigerate.

I promise it'll be some of the tastiest kraut you've eaten if you've only had store-bought before. I showed off my currently-fermenting jar of kraut in this post.
 

badblue

Gold Member
I've recommended kratom to my brother who dose suffer from Crohns as well, even gave him some but I doubt he's ever tried it.

Glad you've found some relive.
 

888

Member
I'm really glad to hear you could find some raw milk. I know a lot of places still don't offer it but I've heard of the positive effects of drinking it regularly.

Milk kefir is totally worth making because it is low effort. Plus, you can make cheese out of it.

'Kraut? Super easy. Why aren't you already making it?

Buy two cabbages and a 1-gallon jar.
Chop cabbage up in ribbons.
Put in a large bowl with about 2 tbsp of salt (I prefer kosher, but any kind is fine) and knead the cabbage in your hands, wringing it and working the salt into the cabbage.
After a few minutes, the cabbage should feel "squeaky" and will darken slightly.
Let sit for 1 hour.
Pack the cabbage into your jar, layering with caraway seeds, top off with clean water and another 1/2 tbsp of salt.
Seal the lid with a ziploc bag with the top inch turned inside out and rubber-banded to the top of the lid. Fill it with water to form a water seal.
Leave out of direct sunlight.
For the first week, push the bag down to force out air bubbles.
Ferment for 1 month total, then refrigerate.

I promise it'll be some of the tastiest kraut you've eaten if you've only had store-bought before. I showed off my currently-fermenting jar of kraut in this post.


Yeah that does seem easy. I’ll give it a shot this week. I love Kraut and can eat it alone.

As far as the milk goes. Raw milk is just amazing. It’s crazy to drink it and taste the grass or whatever the cow had eaten. But it tastes way better than store bought which if I drink now my stomach starts gurgling like it’s gonna blow. Cheese doesn’t bother me tho.

I bought two gallons the other day and my family mowed thru it like it was nothing. 16 bucks for two gallons I’m glad it all was used.
 
Yeah that does seem easy. I’ll give it a shot this week. I love Kraut and can eat it alone.

As far as the milk goes. Raw milk is just amazing. It’s crazy to drink it and taste the grass or whatever the cow had eaten. But it tastes way better than store bought which if I drink now my stomach starts gurgling like it’s gonna blow. Cheese doesn’t bother me tho.

I bought two gallons the other day and my family mowed thru it like it was nothing. 16 bucks for two gallons I’m glad it all was used.
I'll have to look into getting some for my family. Sounds delicious. I don't know if it is offered in my area (last I checked, it was still under some regulations but that depends on your state).
 

888

Member
I've recommended kratom to my brother who dose suffer from Crohns as well, even gave him some but I doubt he's ever tried it.

Glad you've found some relive.

Seriously. Make him try it lol.

I was hopeful to get some pain relief but i wasn’t expecting full symptom relief. I found a reddit post of users with IBD saying they used Kratom and experienced some relief in one manner or another.
 

888

Member
I'll have to look into getting some for my family. Sounds delicious. I don't know if it is offered in my area (last I checked, it was still under some regulations but that depends on your state).

Realmilk.com

Search by state. There was a farm less than 10 mins from my place.

It sucks that it gets a bad rap because of the industrial farming methods that caused so many issues and led to pastuerzation.
 
Realmilk.com

Search by state. There was a farm less than 10 mins from my place.

It sucks that it gets a bad rap because of the industrial farming methods that caused so many issues and led to pastuerzation.
Thanks for the link. Looks like I do have some options in my area.

I think pasteurized is a wonderful invention and is beneficial if you can't ensure quality at industrial scale.

But if raw milk can be bottled without issues of infection, I don't see why it shouldn't be. It's a superior product.
 

888

Member
Thanks for the link. Looks like I do have some options in my area.

I think pasteurized is a wonderful invention and is beneficial if you can't ensure quality at industrial scale.

But if raw milk can be bottled without issues of infection, I don't see why it shouldn't be. It's a superior product.

From my reading, heating up the milk kills the enzymes in it, making it harder to digest and causes other issues.

I guess my frustration is the demonization of raw milk by the very industry that caused the issue in the first place. It can only be sold for “animal” consumption based on the regulations for it.

The fact that everyone I have try it loves it and doesn’t have the same issues as regular milk sells it for me. I’m still going to be light on my milk intake but I do like a big glass of cold milk now and then.
 

888

Member
I am pleased you have found some relief.

It appears the opinions on kratom are mixed: Wikipedia

It for sure is. One of the issues from what I read is where it is gathered and made. If there was actual regulation on it, it can be monitored and made sure it was pure.

As far as abusing it, that’s always an issue with basically everything. Food, Tobacco, alcohol, OTC drugs and RX drugs. I remember the big rage on Sudafed before the real stuff was kept behind the counter.

I ordered from a place online that was recommended as reputable. I’ve seen some in head shops that are sketchy.

There is an American Kratom Association that is working to keep it from being banned and trying to get information out about some of the issues with it and the way it is gathered.

Either way, I’m taking a gram or less. So the very minimal dose for it. I don’t get any sort of feeling from it besides the GI relief.

I actually blame my GI issues on prescribed medicines from Doctors. One cardiologist had me on 325mg aspirin daily for a year and tada I got the issues I have today.
 
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Uhtred

Member
Are you taking any natural anti inflammatory supplements? If you don’t have a bleeding problem try Turmeric. I mention the bleeding because Turmeric can thin blood a bit.
Im not taking any natural supplements. I have heard Tumeric is a good natural anti inlflam.
 

888

Member
Im not taking any natural supplements. I have heard Tumeric is a good natural anti inlflam.

It is. My IBD doc recommended I take it. I did for a long time but I recently stopped because it seemed to increase bleeding since the ulcers were pretty sensitive. But it is good stuff.
 

Uhtred

Member
Im at my wits end...............this is really hurting my quality of life. Don't mean to hijack.
 
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888

Member
Im at my wits end...............this is really hurting my quality of life. Don't mean to hijack.

Not a hijack at all man. I would rather you ask and hopefully get something that helps. I’ll have to research what you are facing. I tend to deep dive trying to find a solution.

When the quality of life drops it really sucks. I’ve spent 7 months in misery and it makes everyone else miserable around me. I can’t spend the time I want with my kids or my wife. Finding something, anything to help is worth it.
 

888

Member
Im at my wits end...............this is really hurting my quality of life. Don't mean to hijack.

So reading about your deal. I assume based on the reading I just did it consists of a bacterial infection? You could try something like Wild Oregeno Oil. It is an anti bacterial and anti inflammatory. I bought some stuff called Joy of the moutains WOO. I do like 5 drops 3 times a day. With water. It helps kill bad bacteria.
 
Possibly some gross details but it's part of the disease.

Sorry for the long winded post, just excited to feel like a normal person after a long 7 months of feeling awful and being unable to play with my kids without the constant reminder of the pain and issues.

I'm happy you've seen such improvements.

As someone who has also had their fair share of digestive issues that have mostly corrected, I think the biggest factor in almost all these problems is the micro-biome we harbor being out of balance or lacking. Here's an interesting article on the topic: here

There's tons of info regarding the depletion / absence of healthy internal flora and the myriad devastating effects that has on human health. I truly don't think we can be healthy without properly feeding the flora that evolved in symbiosis with us.
 

888

Member
I'm happy you've seen such improvements.

As someone who has also had their fair share of digestive issues that have mostly corrected, I think the biggest factor in almost all these problems is the micro-biome we harbor being out of balance or lacking. Here's an interesting article on the topic: here

There's tons of info regarding the depletion / absence of healthy internal flora and the myriad devastating effects that has on human health. I truly don't think we can be healthy without properly feeding the flora that evolved in symbiosis with us.

Totally agree. It’s been one of my main focuses but I always had a hard time when dealing with pills and individual strains. I find it easier when I get it from thinks like Keifr etc. It’s a pretty complex topic and can feel daunting. There was one guy who had UC and he spent his time correcting his Gut Biome and he reports that he is good now but it isn’t easy. He is the one who got me on the track that I am now with the Keifr.

I tried different strains like S. Boullardi, Bifido etc. it’s just easier to eat foods high in them and try to feed the ones you have from what I get.

I’m glad it worked for you. I have noticed improvements doing the mix of things naturally and meds. I just couldn’t get the sigmoid area healed and it was a problem for at least 5 of those months by itself. I even went as far as probiotic enemas to try to get them in there without loss from the stomach. I’ll check out the link you sent while I’m doing my nightly old man reading ;).
 
Totally agree. It’s been one of my main focuses but I always had a hard time when dealing with pills and individual strains. I find it easier when I get it from thinks like Keifr etc. It’s a pretty complex topic and can feel daunting. There was one guy who had UC and he spent his time correcting his Gut Biome and he reports that he is good now but it isn’t easy. He is the one who got me on the track that I am now with the Keifr.

I tried different strains like S. Boullardi, Bifido etc. it’s just easier to eat foods high in them and try to feed the ones you have from what I get.

I’m glad it worked for you. I have noticed improvements doing the mix of things naturally and meds. I just couldn’t get the sigmoid area healed and it was a problem for at least 5 of those months by itself. I even went as far as probiotic enemas to try to get them in there without loss from the stomach. I’ll check out the link you sent while I’m doing my nightly old man reading ;).

Yeah, I mainly changed my diet to mostly plant-based, cut out all sugars (even fruit for a long while) and all processed foods while adding in food-based pro / prebiotics. I added in a lot of fermented foods like sauerkraut and I make my own coconut milk yogurt. (which I can feed different strains of probiotics for that variety.)

I think that the most important thing is diversification - to be as "dirty" as possible inside in terms of your microbiome. It's so important to mix it up in terms of flooding your system with a variety of beneficial flora.

Anyway, I have sympathy for anyone who has gone through significant digestive issues. It's certainly a rough ride until you can make your way through it.
 
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888

Member
Yeah, I mainly changed my diet to mostly plant-based, cut out all sugars (even fruit for a long while) and all processed foods while adding in food-based pro / prebiotics. I added in a lot of fermented foods like sauerkraut and I make my own coconut milk yogurt. (which I can feed different strains of probiotics for that variety.)

I think that the most important thing is diversification - to be as "dirty" as possible inside in terms of your microbiome. It's so important to mix it up in terms of flooding your system with a variety of beneficial flora.

Anyway, I have sympathy for anyone who has gone through significant digestive issues. It's certainly a rough ride until you can make your way through it.

I did good at cutting out sugar and processed foods for a while but it slipped back in. Im working on cutting it out again. I haven’t had much sugar lately but I am imperfect. My hardest part is my support system. My wife, while helpful for medicines and the like, is awful when it comes to food impulses. I’m trying my hardest to get her into better eating. I’m using my kids as a leverage point by flat out saying we are setting the example of what they will eat when they grow up. It seems to be working.

I’m not going to take this leave of symptoms for granted and I’m going to continue working on things. Starting with this avocado.

7 months for this flare and issues off and on back to 2015 it’s nice to have a few days of a reprieve.
 
I did good at cutting out sugar and processed foods for a while but it slipped back in. Im working on cutting it out again. I haven’t had much sugar lately but I am imperfect. My hardest part is my support system. My wife, while helpful for medicines and the like, is awful when it comes to food impulses. I’m trying my hardest to get her into better eating. I’m using my kids as a leverage point by flat out saying we are setting the example of what they will eat when they grow up. It seems to be working.

I’m not going to take this leave of symptoms for granted and I’m going to continue working on things. Starting with this avocado.

7 months for this flare and issues off and on back to 2015 it’s nice to have a few days of a reprieve.

Yeah, your environment really matters. It can be hard to stick to things sometimes when those around you are (unintentionally) sabotaging your efforts. I think you've got to forgive yourself for being human. It's never a good thing to punish yourself for failing to reach or maintain an ideal. We all fail at what we want to do at times. That's just part of life, and we have to accept that part of ourselves.
 
I cured my tummy troubles with a small dose of honey and cinnamon, every second or third morning now. Used to take it daily but turns out its not necessary. No more mucous in stool for over a year.

As for my environment, caffeine is a big culprit. If I drink too much coffee or energy drink, (I used to binge on the aforementioned in the past) then it would undo all the honey effects and right back to IBS-ville for me. But it would need to be extreme, like drinking 5 coffees in one day, or x2 500ml energy drinks. I don't do that anymore.

Also a marked increase in fibre in your diet helps clean your gut of many of the problematic elements that cause inflammation. Extra fiber + honey = success? Worked for me anyway. Everyone is different. I have never pooped blood, that sounds serious.
 
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888

Member
I cured my tummy troubles with a small dose of honey and cinnamon, every second or third morning now. Used to take it daily but turns out its not necessary. No more mucous in stool for over a year.

As for my environment, caffeine is a big culprit. If I drink too much coffee or energy drink, (I used to binge on the aforementioned in the past) then it would undo all the honey effects and right back to IBS-ville for me. But it would need to be extreme, like drinking 5 coffees in one day, or x2 500ml energy drinks. I don't do that anymore.

Also a marked increase in fibre in your diet helps clean your gut of many of the problematic elements that cause inflammation. Extra fiber + honey = success? Worked for me anyway. Everyone is different. I have never pooped blood, that sounds serious.

Caffeine makes everything for me worse. I don’t drink coffee but unsweet tea was my favorite. Now I limit it big time.

The blood at its worst was at least a few table spoons per time up to 15 times a day. I kee a record of everything I do. During the month of November I went to the bathroom 226 times. Most of which was just blood and mucus. Talk about misery. It is now avg a 100 which is like 3 times a day average which is basically my norm from before. Even with the symptoms lingering.

I’m about to really ramp up the fiber if this stays in remission, it only makes sense and I never had a huge amount of fiber in my diet before.
 
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Man that sounds serious. You have many ulcers/wounds in your intestines and stomach. Blood must be coming from there. Should get a colonoscopy and undertake treatment, surely.
 
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888

Member
Man that sounds serious. You have many ulcers/wounds in your intestines and stomach. Blood must be coming from there. Should get a colonoscopy and undertake treatment, surely.

Oh I have had all that. Ive been working with a top notch IBD specialist and even all of the drugs, immunosuppressive drugs, Biologic infusions and Steroids it was only just barely able to allow me to function. But those all have side effects. I had ulcers all through the colon all the way to the very end. This recent discovery to help with the symptoms has been a god send. It’s certainly nice to go to the bathroom and not worry about how much blood I’m losing this time.
 
Glad you found something that works. Many people don't realize what a dramatically negative effect IBS has on overall quality of life. EVERYTHING is affected. I recall once trying to just sit down and play a game on a computer, and I couldn't because my ass was burned to a crisp from a bout of fiery diarrhea. I had to stand around like a douche for 2-3 hours.
 
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Uhtred

Member
So reading about your deal. I assume based on the reading I just did it consists of a bacterial infection? You could try something like Wild Oregeno Oil. It is an anti bacterial and anti inflammatory. I bought some stuff called Joy of the moutains WOO. I do like 5 drops 3 times a day. With water. It helps kill bad bacteria.
I’ll try anything.
 

Darkmakaimura

Can You Imagine What SureAI Is Going To Do With Garfield?
My father's death has really caused a lot of anxiety and depression in me. I have no family or good friends here either so I'm all by myself and it's all really hitting me hard.

I'm taking kratom and it's really helping me wing through it right now.
 
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Darkmakaimura

Can You Imagine What SureAI Is Going To Do With Garfield?
I am pleased you have found some relief.

It appears the opinions on kratom are mixed: Wikipedia
Well this is just my opinion.

It helps and is helping me. It has an effect very similar to opioids like oxycodone. Now, I don't know about physical pain but it is helping me through emotional pain right now and I don't think I could do without it for very long. It is possible I'm addicted but with everything going on it's hard for me to function. As I mentioned, I lost my father who I was taking care of, on November 19th. It hit me really hard and my psychiatrist is not going to prescribe me any anti-anxiety medication so I have to find some alternative and this is the best I can find.
 
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