I apologize for the length if it ends up stretching too long...but I need to talk about it.
I've been with my girlfriend for 7 months now, and 1 month ago she was diagnosed with MS (Multiple Sclerosis). I am 30 and she is 25.
Just some basic info on MS: About 2 months ago she started having symptoms. Numbness below her neck, pain in her hands, fatigue, etc. Her attack is still happening, and she also has vision problems now, occasional spasms, balance issues, nausea, brain fog (trouble thinking), etc. Basically she has almost all the symptoms (which sucks because most people only get a few to start with). Assuming she has the most common type of MS, she will have 10-20 years of relapses and remission periods, and then after that she will slowly decline into further disability (which can also slowly happen before that too). It's not curable, treatments only slow the progression of the disease, and it's for life. Basically it will only get worse.
It's been really overwhelming dealing with this 7 months into a relationship. I have no intentions of leaving her because of this, but I also don't know what the future will bring and if her or I can handle it. She did tell me that she would rather have me leave now than promise to stay and leave later if I couldn't take it, as that would destroy her. If we end up getting married, etc, then I may end up have to be her caregiver. We were coworkers and friends for a long time before we started dating (5 years) and fell in love with each other in that time but neither knew it.
However, this has been really difficult for me, handling the diagnosis and everything. I'm trying to be "strong" for her, but last night I had to get up in the middle of the night to go cry in the bathroom. Since her symptoms started I've been sleeping at her place almost every night, only being at my apartment for 1 night a week and over a few lunch breaks. We've gone from basically hanging out 2-3 times per week to being with each other almost all the time, and it's a big jump to happen all at once, especially with a diagnosis like this.
When we talked about me seeing a psychologist (and her too) to deal with this emotionally and mentally, I mentioned that one thing that really helps me stay unstressed and mentally okay is a night by myself every week or two where I can just play guitar, play games, etc, and zone out mentally. Basically just be alone with no contact with the outside world and have time to myself to think. She took offense at this, and said it was like I wanted to spend less time with her. But it's not about her at all, I love her and being with her, it's about time to "recharge" if that makes sense. She was angry because right now I spend 2 nights per week at a sports practice (for 2.5 hours each time), and 1 with my friends usually on the weekend. Even on the practice nights though, I come over after and stay the night.
So basically I am staying over at her place 5-6 nights a week, and spending a full 3-4 nights per week with her, and also weekend days. Please tell me it's not out of line for me to have time to myself, especially in this type of situation. Obviously the situation is worse for her than me, but even if we were married and living together, I think it would be fine for me to have time to myself for a hobby, etc. I've always been this way, that I need time alone to recharge. I've always been an introvert and being around people constantly for a week or more at a time just makes my anxiety build up.
I'm sorry I'm rambling here, I'm just overwhelmed with the situation. Who expects to have their SO get diagnosed with a life-long neurological condition at 25? Our lives will be totally different and there's nothing that can be done.
I guess I'm just looking for advice, I'm overwhelmed and stressed and anxious and feel like I'm about to burst. I am calling a psychologist at lunch today to make an appoint, as well.