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Girl Born without a face!

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E

El Papa

Member
Incognito said:
I receive food through a tube, and when needed(after surgery or a > 1.0 FVC) I also receive breathing aids.

I'm also glad my parents never decided that the "torture" was too much for me to handle.
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Is your face intact?
 
M

Matlock

Banned
El Papa said:
Is your face intact?
Click to expand...

wheresthekobeshoe.jpg


You be the judge!
 
B

bishoptl

Banstick Emeritus
...

^^ I'm not even going to comment on THAT.

I take my hat off to the parents - what the father said towards the end really struck home. God never gives you more than you can handle. Wow. They're stronger than I ever could be in that situation.
 
P

Poody

What program do you use to photoshop a picture?
ok so the doctors are grafting her face and bone structure in the early phase. How will they decide/know who she'll look like in the future?
 
W

Wendo

Vasectomember
Kobun Heat said:
Jesus Christ, what is up with all of you people going OMG KILL IT!!!!!1

Nowhere in the story or video does it say "and she has no hope of surviving" or whatever. She can see and hear. Her brain is fine. With a stomach tube for eating and a trache to breathe, she's playing in her parents' house with normal baby toys. She has a long road of operations ahead of her, but inside she's a happy, normal human being.

Modern medicine has allowed her to live, it's not causing her undue pain and suffering, or giving the parents false hope. It's giving them REAL hope that doctors will be able to get her to the point where she can eat and breathe on her own.
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After reading that, I went over and read this webpage: http://www.treachercollins.org/main.html

I guess I'm unsure. It looks like there are many people with a similar condition (although not a severe) that have lived happy lives. I'm just not sure that they are in the majority.
 
W

Wendo

Vasectomember
I do think though that it's irresponsible to have a child if you knowingly are a carrier of that genetic defect.
 
Xenon

Xenon

Member
ok so the doctors are grafting her face and bone structure in the early phase. How will they decide/know who she'll look like in the future?
Click to expand...

I also wonder how they are going to address her growth. It’s like she would have to being constantly reconstructed until her teens.

God, this is probably the saddest thing I’ve seen. At least she has two caring parents. Its just fucked up that she is going to grow up in a world with a high percentage of assholes and shows on the WB.
 
K

Kuroyume

Banned
You know she behaves like a sweet child but I can't help but think that a late term abortion (this was before the ban right) would have been better because of all the suffering that child will have to go through now. Even feeding her didn't sound too pretty....
 
X

XS+

Banned
If we didn't live in such an image-conscious society, she'd be fine. But when she's 16, surrounded by the same ephemeral superficiality that fuels our popular culture, she'll agonize over how she looks. Sad, fucked up, tragic -- but true. Life is about more than existing, as some of you are seemingly unable to grasp: Life is a journey of relationships, a trek that leads us from one experience to the next, where we realize its grand beauty. She will never come on that journey. Everyone she comes into contact with, including kin, will be taken aback before the sight of her face; her condition will depress others. Perhaps she could live in another world, but she is incompatible with ours.
 
S

Socreges

Banned
XS+ said:
If we didn't live in such an image-conscious society, she'd be fine. But when she's 16, surrounded by the same ephemeral superficiality that fuels our popular culture, she'll agonize over how she looks. Sad, fucked up, tragic -- but true. Life is about more than existing, as some of you are seemingly unable to grasp: Life is a journey of relationships, a trek that leads us from one experience to the next, where we realize its grand beauty. She will never come on that journey. Everyone she comes into contact with, including kin, will be taken aback before the sight of her face; her condition will depress others. Perhaps she could live in another world, but she is incompatible with ours.
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You are such a pretentious twat. :lol
 
X

XS+

Banned
Socreges said:
You are such a pretentious twat. :lol
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Am I wrong? Imagine the strain anyone she comes into contact with will subject themselves to. How many false smiles will meet her grotesque appearance? It's ironic, really. You call me a "pretentious twat" when, in fact, the real pretense lies in the suggestion she can lead a "normal" life. I'm not mocking her. She's a tragic result of life's roll of the dice. She came up odd.
 
S

Socreges

Banned
XS+ said:
Am I wrong? Imagine the strain anyone she comes into contact with will subject themselves to. How many false smiles will meet her grotesque appearance? It's ironic, really. You call me a "pretentious twat" when, in fact, the real pretense lies in the suggestion she can lead a "normal" life. I'm not mocking her. She's a tragic result of life's roll of the dice. She came up odd.
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You being a pretentious twat and you being correct are not mutually exclusive.
 
F

fart

Savant
her skull's pretty fucked up. only time will tell if she's developmentally normal or near-normal.

that's really a fucking shame.
 
I

Ill Saint

Member
XS+ said:
If we didn't live in such an image-conscious society, she'd be fine. But when she's 16, surrounded by the same ephemeral superficiality that fuels our popular culture, she'll agonize over how she looks.
Click to expand...
XS+ said:
How many false smiles will meet her grotesque appearance?
Click to expand...

Hmmm.
 
D

DDayton

(more a nerd than a geek)
I'm too much of a wimp to view the video, but I am happy to hear about her family and the sacrifices they're making for her. I only hope that I'm half as strong as they are.
 
M

mrklaw

MrArseFace
Just reading that nearly made me cry. Having two kids has made me a sucker for this type of stuff. I guess I'm blessed with them both being healthy. I daren't watch the video at work.

I still laughed at the chunk photoshop though...
 
O

OmniGamer

Member
mrklaw said:
Just reading that nearly made me cry. Having two kids has made me a sucker for this type of stuff. I guess I'm blessed with them both being healthy. I daren't watch the video at work.

I still laughed at the chunk photoshop though...
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Sloth...Chunk was the fat kid who befriended him ;-)
 
B

BojTrek

Banned
Well... I am welling... I think that is what they call it... I have tears almost ready to pop out...

I am sick to my stomach... that poor little girl, she seems to have all of the goofy emotions of any other child that age...

Having a baby girl, who is almost 16 months old... it makes me count my blessings.

I am going to send some money to these people... maybe some toys...

I hate my job so much, but is really nothing compared to what those people have to deal with. I don't pray that often, but when I do it is for people like that...
 
Z

Zaptruder

Banned
So...

what did you guys think about the girl that suffered the car accident and had most of her face and body melted? You know, the girl that kinda looks like darkman...
 
B

BojTrek

Banned
To all you assholes... grow up, grow a heart... wait until you have a kid, which is the most precious thing in the world... the devistation seeing the child suffer from birth to surgery after surgery... that was one of my biggest fears during the pregnancy that the baby would have all hands, arms, legs, feet and healthy face...

As for me, I am heading to lunch and dropping an envelope with a quick message and $20.00... I asked them to buy her an Elmo doll, toy, or video... cuz it is what makes my baby girl happy...
 
M

Minotauro

Finds Purchase on Dog Nutz
BojTrek said:
To all you assholes... grow up, grow a heart... wait until you have a kid, which is the most precious thing in the world... the devistation seeing the child suffer from birth to surgery after surgery... that was one of my biggest fears during the pregnancy that the baby would have all hands, arms, legs, feet and healthy face...
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Oh, shut the fuck up. No one forced you to have a child. There are millions of kids all over the world who need adopting. If you choose to produce another one, you also choose to roll the dice as far as birth defects go.
 
R

Rei_Toei

Fclvat sbe Pnanqn, ru?
Luckily she was born in the US with loving parents. If she had been born in the Netherlands, they would have euthanised her shortly after she was born. Undesirable traits and what not. In the world of Dutch infant euthanasia and Peter Singer, she might not be alive today, at about age 2. But in the lives of of her parents, mercifully, she is their blessing.
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Bullshit.
 
A

Azih

Member
Minotauro said:
Oh, shut the fuck up. No one forced you to have a child. There are millions of kids all over the world who need adopting. If you choose to produce another one, you also choose to roll the dice as far as birth defects go.
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Nope I think Bojtrek pretty much hit it on the head. You're firmly in asshole territory here.
 
M

Matrix

LeBron loves his girlfriend. There is no other woman in the world he’d rather have. The problem is, Dwyane’s not a woman.
Minotauro said:
Oh, shut the fuck up. No one forced you to have a child. There are millions of kids all over the world who need adopting. If you choose to produce another one, you also choose to roll the dice as far as birth defects go.
Click to expand...

You have f-ing issues.You try your hand at a lame ass joke and then tell someone to shut the fuck up cause he called people heartless for making fun of the situation...you need to grow the hell up......better yet,smash yourself in the face a few times with a hammer and then make light of that situation.
 
J

JoshuaJSlone

Member
Thank goodness these people have donations rather than the evil of socialized health care!

Poody said:
ok so the doctors are grafting her face and bone structure in the early phase. How will they decide/know who she'll look like in the future?
Click to expand...
I'd hope it's function over form.
 
M

Minotauro

Finds Purchase on Dog Nutz
Matrix said:
You have f-ing issues.You try your hand at a lame ass joke and then tell someone to shut the fuck up cause he called people heartless for making fun of the situation...you need to grow the hell up......better yet,smash yourself in the face with a hammer and then make light of the situation.
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Hey, don't get me wrong, I genuinely feel bad for the little girl and her parents. She's going to have to go through a lot of really bad things in her life and everyone involved has my sympathies. Then again, I don't think making light of the situation on the internet causes anyone harm.

In addition, I may have been a bit harsh in my response to BojTrek. I just took offense to his holier-than-thou wait-until-you-have-kids attitude.

By the way, I don't deny that I have "f-ing issues" or that I can be an "asshole" on occasion.
 
B

BojTrek

Banned
I was not trying to be "holier" if that is how you spell it...

I would probably joke in my 20's as a way to hide the fact that it really upset me...

But being 34 and actually given life to a being with a mind, personality and shall we say soul... it is unreal, everything I do for the rest of my life is for that child I helped create.

These people feel the same way, they hoped for a child that would smile, laugh, cry, eat like all the other kids... now this poor child will struggle... sure the girl will have the love of family, but she will never have the so-called "normal" life... which sucks...

Every child deserves the best and she might not have a chance for the best because this world is so fucked up...
 
X

XS+

Banned
BojTrek said:
I was not trying to be "holier" if that is how you spell it...

I would probably joke in my 20's as a way to hide the fact that it really upset me...

But being 34 and actually given life to a being with a mind, personality and shall we say soul... it is unreal, everything I do for the rest of my life is for that child I helped create.

These people feel the same way, they hoped for a child that would smile, laugh, cry, eat like all the other kids... now this poor child will struggle... sure the girl will have the love of family, but she will never have the so-called "normal" life... which sucks...

Every child deserves the best and she might not have a chance for the best because this world is so fucked up...
Click to expand...

IMO, they're doing a child a disservice by not giving her a route to a painless exit from this life. Were you her, would you want to leave the house? I could be wrong, though. Perhaps it's a matter of socialization and our acclimation within a collective identity, where, conversely, she will not be aware of how she is projected relative to that collective identity. Maybe she can live a happy life, provided she doesn't become aware of how she looks.
 
J

Jim Bowie

Member
XS+ said:
IMO, they're doing a child a disservice by not giving her a route to a painless exit from this life. Were you her, would you want to leave the house? I could be wrong, though. Perhaps it's a matter of socialization and our acclimation within a collective identity, where, conversely, she will not be aware of how she is projected relative to that collective identity. Maybe she can live a happy life, provided she doesn't become aware of how she looks.
Click to expand...

Well, the doctors said they could make her look alright again, yes? Why the hell not pay for the surgeries so she can lead a happy life? That and the fact that there is nothing critically wrong with the girl. She's not brain-dead, lungless, or heartless. She's just ugly- that doesn't hinder life. Look at some of our most brilliant scientists, some of the best writers- they're not exactly the beautiful people.

You've based a happy, productive life on the assumption that all people will be models, actors, people in the limelight 24/7. That is the inherent flaw in your argument, sir.
 
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