For the posters tempted to make "if you don't have a child you just don't understand" drivebys:
Seriously, reading isn't that hard.
For the posters tempted to make "if you don't have a child you just don't understand" drivebys:
http://www.bbc.co.uk/news/uk-england-london-40685461
Is it any surprise that dickheads are sending death threats when the parents are screaming abuse in court and denying the evidence of the brain damage?
For the posters tempted to make "if you don't have a child you just don't understand" drivebys:
Not only death threats to doctors but harassing the parents of sick children.It's terrible that the parents found out about the results of the scans in court, without seeing them in private first.
However, they should not at all be associated with those sending death threats to those in Great Ormond Street Hospital. Those people may only serve to turn the sympathy of the public away from the parents.
GOSH have literally been responsible for better lives for thousands of kids. For those looking on the outside sending death threats is just utterly disgusting.
Not only death threats to doctors but harassing the parents of sick children.
If you don't have a child, you can't understand.
If it was my child, and there was a .000000001% chance at a cure, by a licensed medical professional, and the government wouldn't let me take my child to try it...heads would roll.
If you don't have a child, you can't understand.
If it was my child, and there was a .000000001% chance at a cure, by a licensed medical professional, and the government wouldn't let me take my child to try it...heads would roll.
Are you for real?
Everyone's lost someone dear to them, but under these circumstances? Their child? A person they've been planning to share their lives with until they depart and their child carries on their teachings and legacy? At that at 10 months?
Don't be ridiculous. I'm not a parent myself and I know how shitty that situation is for all involved
If my children were in this same state, I'd let them go peacefully.
I love my kids more than anything ever. I love them so much I'd never put them through this for my own selfish reasons.
We keep people alive for ourselves, not them. It's a horrible practice.
update: The parents have ended their legal fight so it doesn't look like anything else will happen
http://www.bbc.co.uk/news/uk-england-40708343
Gabrielle Seunagal‏ @ClassySnobbb 9m9 minutes ago
More
I hope @GreatOrmondSt goes out of business. I do. They're complicit. That's my honest take. If you don't like it, too bad. #CharlieGard
The parents have withdrawn the request.
https://www.google.co.uk/amp/s/amp....ents-end-legal-fight-over-critically-ill-baby
GOSH were right all along. Shame it had to go the way it went.
Sadly people will hold GOSH accountable for Charlie's death. Just go out to twitter and hundreds if not thousands of people think that Charlie would have been cured if he got that treatment in the USA
Sadly people will hold GOSH accountable for Charlie's death. Just go out to twitter and hundreds if not thousands of people think that Charlie would have been cured if he got that treatment in the USA
Throughout, his parents' hopes have been sustained by advice received from overseas.
Mitochondrial disorders comprise a specialised and small international field. The
experts in that field meet, collaborate and exchange ideas on a very regular basis and it
is that valued collaboration that allows progress to be made and patients to be provided
with the best possible care. Professor Hirano (”the Professor"), whose laboratory
research has an international reputation, is very well known to the experts at GOSH and
he communicated with them about NBT treatment for Charlie at the very end of
December. In January, GOSH invited the Professor to come and see Charlie. That
invitation remained open at all times but was not taken up until 18 July after being
extended, once again, this time by the Court.
9. In the months between January and July, the Professor provided written and oral
evidence for the best interests hearing in April and, after the Court decided that NBT
was not in Charlie's best interests, he went on to provide further written evidence for
the Court of Appeal and the Supreme Court. Most recently, on 6 July, he co-signed the
letter indicating that he had new information that changed the picture for Charlie, that
brought this case back before the High Court.
10. When the hospital was informed that the Professor had new laboratory findings causing
him to believe NBT would be more beneficial to Charlie than he had previously opined,
GOSH's hope for Charlie and his parents was that that optimism would be confirmed.
It was, therefore, with increasing surprise and disappointment that the hospital listened
to the Professor's fresh evidence to the Court. On 13 July he stated that not only had he
not visited the hospital to examine Charlie but in addition, he had not read Charlie's
contemporaneous medical records or viewed Charlie's brain imaging or read all of the
second opinions about Charlie's condition (obtained from experts all of whom had
taken the opportunity to examine him and consider his records) or even read the Judge's
decision made on 11 April. Further, GOSH was concerned to hear the Professor state,
for the first time, whilst in the witness box, that he retains a financial interest in some
of the NBT compounds he proposed prescribing for Charlie. Devastatingly, the
information obtained since 13 July gives no cause for optimism. Rather, it confirms that
whilst NBT may well assist others in the future, it cannot and could not have assisted
Charlie.
Sums up everyone wrong with the healthcare system in America in a single sentence.Further, GOSH was concerned to hear the Professor state, for the first time, whilst in the witness box, that he retains a financial interest in some of the NBT compounds he proposed prescribing for Charlie.
And there it is right there:
Sums up everyone wrong with the healthcare system in America in a single sentence.
The whole thing has been a disgrace.
I get the parents clinging to any hope. But they've been used by the usual 'anti-establishment' muh freedom far right.
but fundamentally. The timeline goes like this
There's an extremely experimental treatment in the states which the parents want to try
The Doctors treating Charlie apply for an ethics board exemption to be allowed to try the treatment despite the low likelihood of success (notwithstanding the treatment is not a proposed cure)
Charlie's condition rapidly deteriorates to the point GOSH says there's no point now
Legal battle ensues.
The US doctor offering the treatment, agrees to the Judge's request to come over and examine Charlie and look at his medical records in detail (something which he hadn't yet done)
US Doctor upon examining Charlie indicates that GOSH are correct and treatment will offer no benefit.
When it comes out in the wash, it'll almost certainly be shown that Charlie's condition had deteriorated to the point where no further treatment was valid at exactly the point the doctors at GOSH said it did. I get the parents clinging to hope, but the whole furor about what medically seems to be a correct decision is so unseemly.
The high profile campaigning by the parents left me feeling a bit uncomfortable, there's a fine line between desperately seeking help and starting to play the media game, and they were right on the line in my opinion.
Ultimately though it's all just a shame, poor kid hasn't benefited from any of this noise and will suffer the same fate he was going to right from the off. The parents can't be blamed for wanting to hold on, but in the cold light of day his suffering should end.
And there it is right there:
Sums up everyone wrong with the healthcare system in America in a single sentence.
So a world renowned children's hospital had its name dragged though the mud because someone just had to try to sell their niche product and put it into the public eye...
jesus christ.
The whole thing has been a disgrace.
I get the parents clinging to any hope. But they've been used by the usual 'anti-establishment' muh freedom far right.
"they've been used by"?
It sounds more like they are / they purposely made use of others to try to get what they wanted.
Still at least the Pope offered his prayers, which (un)surprisingly has done sweet fuck all to help.
Any opportunity to highlight the hypocrisy of religionShit, you're right, Should have brought him in for his medical opinion. Anti-religious people pick the weirdest stumps to stand on.
Shit, you're right, Should have brought him in for his medical opinion. .
positive(ish) thoughts:
- I hope the parents are comforted by the fact that their son, with their help, has achieved an awful lot in his short life. The money and awareness raised will help other children for decades.
Glad this is finally over.
Expecting my first in 4 weeks and would never have let it get this far.
...
Have you read this thread?...
Most of the "awareness" and "achievement" has been negative.
What I find most disturbing about this is that the parents kept tormenting him when it became clear that he was a goner. People don't even do that to animals. Why children?
GAF is GAF.
So you haven't read the thread then.
Because I'm not talking about GAF.
I mean this:
http://www.gosh.nhs.uk/news/latest-...man-great-ormond-street-hospital-22-july-2017
However, in recent weeks the GOSH community has been subjected to a shocking and disgraceful tide of hostility and disturbance. Staff have received abuse both in the street and online. Thousands of abusive messages have been sent to doctors and nurses whose life's work is to care for sick children. Many of these messages are menacing, including death threats. Families have been harassed and discomforted while visiting their children, and we have received complaints of unacceptable behaviour even within the hospital itself.
Whatever the strong emotions raised by this case, there can be no excuse for patients and families to have their privacy and peace disturbed as they deal with their own often very stressful situations or for dedicated doctors and nurses to suffer this kind of abuse.
Great Ormond Street Hospital is in close contact with the Metropolitan Police and we will do everything possible to hold to account anybody who involved in this kind of deplorable behaviour.
Assholes exist. Surprise! That's nothing to do with the actions of the parents.
From what I've gathered, it has to do with a very young child versus a person who has lived a decently long life. That's what I get from it and the opinions I seemed to have read.This is a big ass thread, so this has probably already been answered, but what makes this case any different to those that involve keeping alive people in a permanent vegetative state? I'm smack bang in the middle on this one, in that I can appreciate the stance of the hospital, to a degree, but what kind of precedent does it set, when doctors can pick or choose which lives should be forfeit? Or am I naive and this happens regularly already?
Again, you obviously haven't read the thread.
I give up, I'm not going to summarize the whole thread for you.